The Bartlinski Bunch

" Teresa "

" Teresa "

Teresa "Fang Fang " Bartlinski

Teresa was born on December 25, 2006 in China. She was born with a very complex heart condition. In July 2010, GOD added Teresa to our family through adoption. We have been blessed with 9 wonderful children. Gods grace has woven us together as a family. Upon bringing Teresa home from China we unfortunately learned she not only needed a heart transplant but also a lung transplant. Her doctors feel she would not survive this operation. Please help us to pray for a miracle for Teresa's heart and lungs to be healed. She is a very special little soul who has touched so many lives around the world ...
I BELIEVE IN MIRACLES!

Thursday, June 27, 2013

Donor Heart Was Rejected

Unfortunately, following the heart catheterization the doctors determined that the donor heart has been rejected. Teresa will be relisted at the top of the list for a new heart. She will remain on life support until Monday, when she will go through another surgery to put in a Berlin heart. This will be her 4th major procedure in 2 weeks, so the first major hurdle will be for her to fight to survive this operation.

The Berlin heart will give her 6 to 8 months to wait for another heart. During this time she will be able to come out of sedation, but will have to remain in CHOP with the Berlin heart and other machines attached to her at all times. The doctors at CHOP have never seen another child with these same circumstances, and have only implanted this device for one other child.

Please continue to pray for Teresa!! We need to pray that all other organs will remain stable and that she survives Monday's procedure!!

- Laura

73 comments:

PatL said...

Praying for everyone! God is fairhful!

Diane Finn said...

So, so sorry to hear this news. We will continue to pray for Teresa! I found this site a while ago and it looks like this little went through a similar situation - heart transplant, rejection, berlin heart, transplant. She seems to be doing very well. Here's her blog http://4mykaidence.blogspot.com/

Anonymous said...

I have been following your lovely little girl's progress. I heart goes out to you and your family. She is in my thoughts and I hope she does well on Monday.

The 4-O-7 said...

We'll be praying. God bless you.
The Foro Family

Anonymous said...

Our daughter received 2 heart transplants and I have been totally connected to your story. It has brought back so many memories of what we all went through together. Teresa has captured my heart. She has the will of many and an army of supporters storming the gates with prayer. I check your blog numerous times throughout the day - bless you for keeping us all updated. I will continue to pray for Teresa, your family and the surgeons and hospital staff. I know this child has already performed miracles in the way she has touched and changed so many lives but her work here has just begun. Sending you much love!

Anonymous said...

We will continue to pray for Teresa and your family.

Linda Mills said...

Dear God in Heaven, please hold sweet little Teresa in your loving and gentle arms. Please relieve her of her pain, and bring a smile to her face. Give her a chance to hug her dollies, and please, help her to survive her next surgery and receive another heart very soon so that she can return to the family that loves her so. Dear God, please hold Ed and Ann in your loving arms as well. They are weary with worry. They need your extra love and strength. See that they get enough rest and food, and make sure they hold each other for comfort. Please watch over their wonderful family and give them all extra love and care as well.
In Jesus name, Amen

Anne B. said...

We will not lose HOPE! God is able and he is faithful....but I know how long the journey feels. So thankful that you know the love of Jesus and that he carries you. Holding you close in prayer. (((HUGS))) from RI.

Anonymous said...

Praying for your daughter. We have a 31 yr. Old son waiting for a heart transplant. We are holding you all in prayer.

Raelyn said...

Ann....
"Unfortunately, following the heart catheterization the doctors determined that the donor heart has been rejected.". Oh no!! I am so sorry. Praying now for a new heart. That it bond and flow successfully with Teresa's little body. But I have leapt ahead here. Praying--hard!!--for Teresa's Berlin heart surgery. That there be absolutely zero complications. She is a fighter, your girl. May God continuously watch over her. Six to eight months of waiting for a new heart?! I cannot even imagine. Praying for it to be sooner. Ironically, I can feel my own heart pounding....
--Raelyn

Anonymous said...

We are praying for Teresa and will keep praying!

Heidi D said...

So very sorry to hear things have taken this turn. Teresa seems like such a fighter, stay strong precious girl. My thoughts & prayers are with you all.

Reena said...

I am so sad to hear this news and am praying for Teresa and your entire family. There was recently a news story about a little girl who lived with a Berlin heart for several months, close to a year as I recall. Then she received a heart transplant and is doing fine. Never lose hope--- so many of us are praying for Teresa.

Anonymous said...

Prayers for you all at this very sad time .... Please continue to believe that GOD is with you through it all. ....
BE NOT AFRAID was the homily on Sunday and the song runs through my mind as I read your updates. Much love and big warm hugs for each of you! may your little princess have a peaceful night so you may all rest and gain the strength you need. Many prayers!

Trish said...

So very sorry to hear this. I will continue to post your blogs on Facebook and continue to spread the word for prayers everywhere. Love and prayers to you and Ed.

Anonymous said...

I was so hoping that the heart would recover and be accepted by Teresa. My prayers are with you.

Joanne said...

As Reena said, there was a program about a family who have 3 or more children with heart disease. The second daughter waited almost a year for a heart and they had her on a heart pump in the hospital - done in California - before she received a new heart. From following your posts, it sounds like you have a real "spicy girl" there and we are all pulling for her!! God bless!!

Anonymous said...

Our family is hoping for the best and are thinking of you.

Donna Musselwhite said...

Teresa has been in the thoughts and prayers of my family! We pray for strenght, healing and the perfect donor for this sweet little girl!!!

Anonymous said...

Wow - words do not express how any of us feel right now. At least the Berlin heart gives you some hope and more time. Having to stay in Philly is a challenge for your family, I'm sure. I know your lives must feel completely upside down right now. We will be praying for you. We can never understand what we face in life, but we will pray that God will give you the physical, emotional, and spiritual strength to face each day.

About Us said...

Sending prayers from Virginia for your Warrior Princess and your family.

LA said...

Dear Ann, Laura, and family,

I am so sad to read this update, but I still believe in miracles. There is always hope for those who believe. Myself, my family, and friends will continue our prayers for her complete healing. We will not give up praying and having hope.

God bless all of you,
Lee Ann

Anonymous said...

Praying for Teresa here in TN.

Kathrin said...

I am so sorry to hear about the rejection of the heart. I have been following Teresa's story for a couple of days. Praying for survival and healing for this brave little fighter.

Anonymous said...

Praying on the Florida coast for Teresa...mom and dad and the entire family and all those closest to you all. God bless.....♥

Anonymous said...

Prayers for you and your family

Susan Samuelson said...

I am so very sorry to hear this news. I will continue to pray for her. God will guide the surgeon's hand just as He has all along. My prayers are with you. She is a fighter.

Sarah said...

I continue to pray and stand in faith that our God will do miracles in this precious little girl's life.

Anonymous said...

Praying for you all. I'm a Nance cousin.

Lillie Family said...

Praying for your family and Teresa from Michigan. Your story continues to touch me daily and I am praying so hard that the surgery goes well.

I hope you can feel Gods arms around you in this time. You are an inspiration to our family.

Deanna said...

Praying, praying, praying in Memphis for Teresa and your entire family.

Jan said...

We continue to pray for a miracle for Teresa and strength for you all who love and care for her so greatly. Dear God, please sustain Ann and Ed during this difficult time. Give them peace, strength, and comfort I pray. Comfort the other children oh God. Hold each of them in the palm of your hand!
Praying in SC!!!

Esther Paris in Rhode Island said...

Wow. What news. Yikes. My brother died tragically of stroke in 2003, and he became a hero donor of both kidneys and his liver. I ask his intercession too as Teresa continues her sojourn here. Hugs and prayers from a stranger in Rhode Island.

likeschocolate said...

Ugh, poor miss T. Kepping her in our prayers.

Annie said...

God have mercy! HE is still on the throne and his mercies are new EVERY DAY. May he bring healing! So be it!

Karen Dawkins said...

WOW!!! She is such a fighter. We are thankful God has seen her through such difficult circumstances already and trust in His plan for her. May God be with you all.

The Jiu Jiu said...

I'm sitting here with literal tears of frustration in my eyes. Holding you all in my heart & thoughts... Refuah Shlemah...!

Life with Kaishon said...

Praying with everything in me.

It Is What It Is said...

Ugh, this is so not the news that any of us, especially you, her parents, family, and friends, were hoping for.

I look at that picture of her, her little body trying with all its might, to pull through.

Hoping for a turnaround for her with the Berlin heart and that a suitable donor is found in short order.

Chris Simcoe said...

Keep fighting Teresa!!!

Smitheroni said...

Like so many others we have been and continue to send our prayers. We have faith!

Smitheroni said...

Like so many others we have been and will continue to send up our prayers. We have faith.

Anonymous said...

Still praying hard in so cal and passing on the info to anyone who will pray - would a second opinion be in order - I thought there were ways to deal with rejection - I tell my daughters to pray as well as my wife

Anonymous said...

I want her to get to disneyworld soooo bad it hurts - praying hard

Anonymous said...

Do you know Danny and Mary Wusterbarth? Their daughter Brea, adopted from China, had a berlin heart, then a transplant I believe. I don't know them, (or you) just remember their blog, still available but no longer active. But if interested you could find them on facebook.
Hoping for the best for you and your family. You may not want to post this, just thought it might be a good connection for you.
From another adoptive mom.

Anonymous said...

Such hard news to take. Sending positive vibes your way. I remember Half the Sky advocating for your Teresa. I want to pray for a new heart for her but it also means someone else must die. So hard, love your girl and I so wish the heart she does have would start working. Sending prayers your way. Hoping a new heart will come soon.

Anonymous said...

So sorry to hear this. Will continue to pray for little Teresa. Good thoughts from Kansas to your family as well.

Anonymous said...

Hang in there! Know that Jesus is holding your baby girl in his arms every step of the way. Prayers for your family in Montgomery, Texas!!

Aus said...

Oh guys - can't.stop.the.tears...may our Father bring you the Healing that is do to this brave soul and her family....

holding you guys in our hearts and prayers - hugs -

aus and co.

Wendy said...

Praying hard here in Wisconsin. Teresa is a fighter and this is another fight she will fight and concur with the love of God and the support of so many family and friends. God bless you!

Robin Schneider said...

Praying in Colorado for Teresa and the whole family. God bless, Mrs. Schneider

Dex and Mel said...

Praying for you all in TN! Melanie, Dexter, Lucy and Nina

corinnec said...

2 Lord, be gracious to us; we long for you. Be our strength every morning, our salvation in time of distress. Isaiah33:2
Praying for you in NC

Anonymous said...

I am so sorry to hear this news. Continuing to pray for Teresa and your whole family - and especially for a successful surgery on Monday with no complications. Theresa from Georgia




Anonymous said...

If this medical team is inexperienced in this circumstance, is it possible then to have another, more experienced, team implant the Berlin EXCOR heart instead?!?

Experience is critical in this type of surgery. Perhaps a team from Hopkins??

my family said...

praying God heals your precious little one's body

Anonymous said...

morning noon and night...praying praying praying. Lifting Teresa to the Lord....begging actually, that HE heal her.

Jennie said...

Upholding your family and little Teresa in prayers..Praying in Durham, North Carolina.

John M said...

I am sorry to hear that this heart was rejected Laura. We all still love the Lord, we love Teresa and your Family w/ the love God has given us. If I may share a poem I wrote long ago called "Beauty."

Lovely as a flower in full bloom,
Your beauty radiates from a swollen womb,
Your gentle sweet touch warms my soul,
You give me strength and courage to be bold,
To you I give mind, body and soul,
Your everlasting beauty has made me whole,
You are more to me than the air I breathe,
It is you that gives it, freely to me,
The beauty I speak of is not of your skin,
It's the rare beauty that comes from within,
It covers over all faults and pains,
It's the only beauty that forever remains,
It's the beauty that brings together marriages and friends,
It's the kind of beauty that never offends,
What then, is this beauty I speak of,
It's a rare beauty, the beauty of Love.

And that is the *beauty* that God has shown us and we show you, Teresa and your Family. We are still praying, the Lord has blessed you.
John M

Anonymous said...

Sorry to hear that news. We will continue to pray for Teresa, her family, and the Team at CHOP. We trust in HIM! - The Stanghellini family.

Anonymous said...

Praying here...God is faithful! We are also an adoptive family with children from China. We live outside Philadelphia and would love to help you in any way possible during your long term stay. It sounds like a local team may be helpful, so when you have a chance, please contact me at: deb.padden@gmail.com.

Anonymous said...

I will be praying for Teresa too I am a good friend to her when we did a good thing through aktion club of Marley and I know her family is going through this time too get well Teresa love you sweetie

Wanda House said...

Teresa, you, and your family have been in my prayers and thoughts for a long time, but especially during this difficult time for Teresa. Praying that all will go well on Monday and that Teresa will get a new heart very soon. May God's loving arms wrap around you and give you the strength you need. May you feel God's presence every moment of every day.

Mary DeGennaro said...

Continuing to pray for sweet Teresa, and the rest of the family. Praying for strength for all of you!! And wisdom for her doctors.

Anonymous said...

Praying for your girl and so upset to hear the news yesterday..just no words! Just keep on believing and standing on faith...God is still in control no matter what the odds are... I passed away during an allergic reaction during gallbladder surgery at the age if 14 and was infected and with a fever that should have left me majorly damaged. But I survived against it all, so can your girl! Don't give up and tell your baby to not give up either, she is wanted here on earth!!!!

Leslie said...

Praying for your princess! Praying for all of you,

Meishas Mom said...

I remember them and that blog...tried to find it so I could let Teresa's family know..glad to see someone else remember that blog.

Anonymous said...

Continue to pray for your family. We believe!!!!

B. Keirle said...

Will continue praying for Teresa and her family. Prayers from Catonsville, MD...

Anonymous said...

Many prayers for hope and good health from Baltimore. I am so very sorry to hear the recent news. I have kept Teresa in my prayers and will continue to pray for her.

Anonymous said...

My friend's daughter was on a berlin heart when she was just a baby (about a year old), and then she had her transplant. She did amazingly and is a normal kid now. :)

Anonymous said...

May G-d bless and strengthen Teresa and all of you who care for her. May she have a refuah shlemah (complete recovery)!

(More than 35 years ago one of my sons died of heart disease at Children's Hospital, before the miracles of today were available.)

You must have every faith and belief that Teresa will come through this Valley of the Shadow of Death and go on to lead a happy and productive life.

Anonymous said...

Many kids have HPLHS . Not many live , I'm 27 and had all operations at CHOP 86-89. This is not the first HPLHS case . My mom had many friends that had babies that died from it .