Teresa is taking baby steps. She is still teaching me so much on this journey. Right now it is patience and giving complete trust and control to God.
Teresa is stable at the moment. We will let her heart rest a few more days and then she will have another major surgery on Monday. We are praying for no major complications while on ECMO and for her kidneys to start functioning better.
She is fighting so hard. She is now opening her eyes a little and squeezing our hand and answering questions with a squeeze. We can tell that magical princess personality is still there( this was a concern after suffering through CPR for thirty minutes).
Dr. Fuller feels confident she will be able to somehow repair the left atrium pulmonary veins. She will know more when she actually visualizes her heart.
For me I wanted the echo to show full , perfect heart function today and be taken off ECMO. This didn't happen.
Her eyes , nose and mouth are still bleeding from the blood thinners that are needed for the ECMO machine to not clot.
It is very difficult to watch Teresa cry silent tears.
We feel so helpless.
She is trying so hard to be the boss.
Today we had a wonderful visit from Casey Cares! What an unexpected bit of happiness.
Three of my best friends also
drove up to visit and brought Gemma ,Emilia and Grace for a visit.
Meredith ,the child life specialist helped to prepare the girls for all of the machines that they would see hooked up to Teresa. They all held her hand and talked to her.
We are taking everything day to day and minute to minute, one baby step at a time.
Thank you for all of the prayers and love. Please know we read and hear all of them and are so grateful!
God is in control and will need a few more days to perform Teresa's miracle.
Thursday, June 20, 2013
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17 comments:
Thank you so much for keeping us posted. I am so happy that you received some hopeful news. Teresa is a fighter and I believe she will heal. Prayers for you all!
We are pulling for your beautiful family and sweet little girl. Hannah is very determined that Theresa get well so she can come for a sleepover. I told her that might be a while, but to have faith! Theresa sounds like a tough cookie!
Teresa has stolen my heart. I am praying for her. She is so very precious. Remember, everything is on God's clock. I'm going to have my Sunday School class 2-3rd graders make Teresa some cards Sunday. Prayers from Louisville, KY. Love in Christ Jesus, Susan
Angels are watching & protecting!
Have faith!!!!
Our family is praying for Teresa's miracle. She truly does touch so many peoples lives. A true blessing to the world. God bless you all.
Prayers out from Westminster. God is great!
I will keep praying Ann! Teresa is a fighter and what a testament she will be to God's goodness and glory! She has already touched so many hearts!
Thankful for baby steps and a plan. Praying for your sweet girl and thinking about all of you throughout the day. I just love your sweet girl- she is such a blessing!!
HUGS,
Jean
Praying and believing that God will perform a miracle for T! :)
Thank you for the amazing job you are doing in keeping this blog updated- Teresa and your family have been in my mind and heart all week. Will continue to send wishes and thoughts of love and strength to you and Teresa and your whole family!
Prayers from France.
Ann and family - I look at those pictures and want only to gently crawl into that bed and hold that tiny angel to comfort all her pain and tears...just like I know that you do.
Praying our hearts out for you -
hugs - aus and co.
What a precious gift you have in Teresa! My Jesus mercy on this sweet baby and her family!
Praying that this Friday morning finds Teresa improved even the slightest little bit. God is with her and knows when the next baby step will be. She is on the prayer list at my church. Hang in there. Love in Christ Jesus Susan
Prayers from Louisville, KY
Praying for daily miracles! God bless you & your beautiful family!
The Lord your God is with you,
He is mighty to save,
He will take great delight in you,
He will quiet you with his love
He will rejoice over you with singing.
Zephaniah 3:17
I pray the Lord will fill you with peace and His strength during these days. May His words reassure You. He is surely rejoicing over Teresa.
Barbara
My friend sends a daily novena to me. Today started a new one, and it couldn't be more appropriate:
O Little Therese of the Child Jesus,
please pick for me a rose
from the heavenly gardens
and send it to me as a message of love.
O Little Flower of Jesus,
ask God today to grant the favours
I now place with confidence in your hands...
(Mention your intentions here...)
Saint Therese,
help me to always believe as you did,
in God's great love for me,
so that I might imitate your "Little Way" each day.
Amen
Praying for Teresa.
Nancy
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