Our Place Called Home: Day 12 ECMO

Teresa "Fang Fang " Bartlinski

Teresa was born on December 25, 2006 in China. She was born with a very complex heart condition. In July 2010, GOD added Teresa to our family through adoption. We have been blessed with 9 wonderful children. Gods grace has woven us together as a family. Upon bringing Teresa home from China we unfortunately learned she not only needed a heart transplant but also a lung transplant. Her doctors feel she would not survive this operation. Please help us to pray for a miracle for Teresa's heart and lungs to be healed. She is a very special little soul who has touched so many lives around the world ...
I BELIEVE IN MIRACLES!

Saturday, June 29, 2013

Day 12 ECMO

Thank you all who dropped off Tieras for Teresa ! They are all beautiful. I can not wait for Miss T. to see them! She was stable on the ECMO today day 12. Her lungs are VERY junky and the x ray is not good. They MUST improve by monday or she will not survive the Berlin. The bleeding in her nose mouth and eyes has slowed down . The concern is the amount of bleeding that will occur during surgery may not be able to be controlled because of the amount of blood thinners she is on for the past 12 days. She is still VERY heavily sedated but continues to come to every 2-3 hours. I love to see her eyes open. But she is so scared because she does not understand the tubes in her mouth. She shakes her head no that she is not in any pain , but shakes her head yes she wants that tube out of her mouth ! She gave me the thumbs up when I told her we would take her to Disney World to see all the Princesses when she gets better. She does not like it when I talk about Gemma or Home . This makes her cry silent tears. Just breaks my heart.
Please pray specifically for her lungs to heal and clear up , her to have no ECMO emergencies , and ALL her organs to stay strong !

Little Miss T. is fighting hard still. She is tiny but mighty! She continues to defy all odds. On Monday Our Good and Gracious God will show us His Miracle. For God is Good ALL of the time!

28 comments:

Anonymous said...: Will Specifically Be Praying For Those Things Tonight, Tomorrow, And Monday. - Dave Stanghellini And Family In New York.; June 29, 2013 at 11:10 PM
Anonymous said...: I'm glad to hear Teresa is still strong despite how scary this all can be. I'm just hoping with all my heart that her lungs clear up soon. Sending all my love and prayers to Teresa and the family.; June 29, 2013 at 11:13 PM
finding foster said...: Tiny but Mighty! Yes, indeed Sweet Teresa! We all LOVE YOU Sweet Girl! You can do this, praying for clear lungs Baby Girl.!; June 29, 2013 at 11:17 PM
Jean said...: Yes, Our God is good ALL the TIME!

Praying for clear lungs and for everything to be ready to go on Monday!

Blessings to her Mommy and Daddy. I feel like I am learning so much about our LOrd's love for us. Thank you for sharing Teresa's story!

I will continue to pray- she has stolen my heart!; June 30, 2013 at 12:06 AM
Linda said...: You are a mighty warrior too, Ann. My family is praying for Teresa and the rest of your family. May God be glorified. Amen.; June 30, 2013 at 1:13 AM
Anonymous said...: Praying for Teresa.; June 30, 2013 at 6:47 AM
Lynda said...: Will not stop praying!! Breaks my heart at this long separation for she and Gemma, know the special bond you've spoke of between the two of them. Just got to love the strong spirit of your tiny warrior princess!! Stay strong Teresa, still watching, waiting, believing and praying for God to bring total healing to you!!!; June 30, 2013 at 7:21 AM
Anonymous said...: I have been following your story since I saw Teresa on the Today Show. I am amazed by her spirit and her will to fight. I am also amazed by you who are her wonderful parents. I am praying hard for all of you and I have passed your story to other family members who are also praying. We love all of you and feel that you are all a part of our family, especially Teresa who reminds me so much of my own little princess who loves to dance, sign and wear tiaras. I know that God will bless us all with the miracle of Teresa's healing. Stay strong!!!; June 30, 2013 at 8:17 AM
Anonymous said...: praing for you all!!; June 30, 2013 at 8:21 AM
LA said...: HI Ann,

Yes our God is an Awesome God !! No miracle is to great for HIm to perform. I am also happy forTeresa and your family that she is pain free. Only God knows what lies in Teresa's future, but the intelligence and skills that these doctors, nurses, and other hospital staff have that care for Teresa is God given ! Trusting that God will guide their every move and give her many more years here on earth so others can see His miracle in person :)
Getting ready to leave for church and will be praying hard. Thank you for continually posting.
God bless you, Teresa, and your family and give you all the strength to endure until Teresa's healing is complete.; June 30, 2013 at 8:28 AM
Anonymous said...: God has His plan for Teresa-- not easy for you to clearly know this yet. Have you ever looked at a beautiful tapestry hanging on a wall by standing right up close to it?? All you can see are the individual threads woven in and out. It is not until you stand back, away from those little threads, that you can see the absolutely gorgeous picture that each of those little threads have combined together to make-- your Teresa is one of those extra special little threads-- she is just one of those special people that is a critical part of God's plan. She is in His hands and He is with her, AND you, always. All of you are strongly in my prayers. Hang in there, Little Princess, for God loves you so very much-- He knows what He is doing, even if it is not very clear right now as to His plan.; June 30, 2013 at 8:29 AM
TEG said...: Thank you so much for the update! I've been to the site several times. I so want in the worst way for the World's Princess to survive all this! God please take charge and give Little Teresa and her body the strength to make it through this all and become well again! Will continue to pray!; June 30, 2013 at 8:38 AM
Anonymous said...: Wanted you to know that our daughter was in a serious car accident 3 years ago and has since endured 13 major surgeries. The type of injury involved a great deal of pain the type that she would go into shock if it was not managed. We have since discussed her time in the hospital and 6 months of intense recovery.
I am amazed that god had a way of erasing all the pain and bad memories from that time in her life. I just wanted you to know that while we her parents and family have vivid memories of that terrible time my daughter almost recalls nothing
What a blessing; June 30, 2013 at 8:43 AM
Esther Paris in Rhode Island said...: Thank you for telling us specific things for which to pray. I am sorry to read that talk of home makes her so sad. I am sure she's terribly homesick atop being physically sick. Continuing to pray for healing, as wellvas thanking God for every minute you've enjoyed her and every minute she has survived so far. What an amazing journey she's had from day one.; June 30, 2013 at 8:43 AM
Sarah said...: Praying for Theresa's lungs today!; June 30, 2013 at 9:22 AM
Aus said...: Ann and family - I know it sounds like the same thing every time I type - but prayers continue - just wish there was more that any of us could do....trusting in the Will of our Father...

hugs - aus and co.; June 30, 2013 at 9:49 AM
Anonymous said...: Love, strength, and peace I send to your little earth angel!; June 30, 2013 at 10:14 AM
Anonymous said...: Prayers coming from Belgium. Stay strong little one!; June 30, 2013 at 10:21 AM
Jacqui, Guelph, Ontario, Canada said...: This just breaks my heart that someone so young has to go thru this. My thoughts and prayers are with little Miss T everyday! God is good and he will watch over her.; June 30, 2013 at 10:40 AM
Anonymous said...: Keep fighting for your girl, with God all things are possible. We continue to hope and pray right along side of you all!

Lisa and Family; June 30, 2013 at 11:34 AM
Anonymous said...: Praying for all of you. Praying for her lungs and all her organs to get healthy and stay healthy. Praying for the doctors to help her. God bless all of you. Keep up your strength. Flo; June 30, 2013 at 11:35 AM
Sandy said...: I will pray for sweet Teresa.
Love from NC; June 30, 2013 at 11:46 AM
Anonymous said...: Keep fighting little one. When I was a little girl with my 1st open heart surgery my grandmother said " don't be afraid Jesus will hold your hand the whole time." He did and I know he's holding Teresa in his arms and watching over her every day. I wake up to check for updates and don't go to bed without checking either. She has forever touched my heart. Maybe because we are both fighters. Prayers everyday for her, family, and medical team.

Laura
Virginia; June 30, 2013 at 12:25 PM
Anonymous said...: We pray for Teresa to get well and for you to be strong.

God bless; June 30, 2013 at 12:30 PM
Anonymous said...: My thoughts and prayers are with you and your family.; June 30, 2013 at 1:33 PM
Anonymous said...: I am so inspired by your family's faith and trust in Gods will! There is something so so special about Teresa, I am one of thousands following her story and praying that she continue her journey on earth, just doesn't feel like she finished here yet! Again, your families faith in what Gods PLAN is,is such a testament to all of us. Continuing to pray for all of you! Hugs from St. Louis, MO; June 30, 2013 at 1:57 PM
Anonymous said...: Prayers going up from St. Augustine. God's life tests are most often unpleasent and hard to figure out. They always teach us and perpare us for future tests. In the end, we will all understand why and agree they were for our good. Stand strong. Love you all. Dan Lori Casey Anna Tim; June 30, 2013 at 4:25 PM
Mary Lou said...: Ann....
"Her lungs are VERY junky and the x ray is not good. They MUST improve by Monday or she will not survive the Berlin.". Miracles. Do you believe in them? I do, I do!! I am praying hard and hoping beyond hope for God to improve Teresa's lungs by Monday. That is tomorrow. Correct? May Teresa's lung improvement {And healing!!} be another one of God's miracles. ;)
"The bleeding in her nose mouth and eyes has slowed down.". Thanks be to God!! I am praying that it stop completely!! ;-D
"The concern is the amount of bleeding that will occur during surgery may not be able to be controlled because of the amount of blood thinners she is on for the past 12 days.". I am praying for the above request.... May Teresa's bleeding stop completely.... Before Monday. ;)
My heart just breaks for Teresa.... :-(
--Hugs!!--
--Raelyn; June 30, 2013 at 4:28 PM

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