Thursday, April 26, 2012
Wednesday, April 25, 2012
Emilia's surgery was scheduled to start at 9 but she was bumped to 3. She was so hungry having to wait an additional 6 hours. Dr. Standard felt bad so he sent her down to make a Build A Bear ( there is a store in the lobby of the Hospital). He is such a fantastic Doctor. People come from all over the world to see him . It is phenomenal what he can do . His imagination ...
Posted by Our Family at 4/25/2012 07:37:00 PM
Monday, April 23, 2012
Posted by Our Family at 4/23/2012 08:54:00 PM
Sunday, April 15, 2012
"Look Mom at my heart ."
I turned around to see what she was talking about ... Teresa had made her hand and her little hand into the shape of a heart ... actually half a heart because of her little hand . The sad thing is this is exactly what her heart looks like , half a heart. Half a heart that has miraculously kept beating for 5 1/2 years !
Still no word from CHOP yet. I am being patient , well at least for a few more days then I think I might have to call .
Today David and Mayzie and April and her dog Claire came to visit. ( you can see April and Claires story and video at paws4people.org) Her story is very inspirational .
Emilia had so much fun working with Mayzie and Claire.
Posted by Our Family at 4/15/2012 08:00:00 PM
Sunday, April 1, 2012
Friday afternoon we headed down to NC for Mayzie and Emilia's graduation . All the girls were in the car packed and ready to go and the phone rings...normally I would have just let it ring since everyone was already in the car. (The troops can get restless when not in motion ). BUT I didn't , I answered it and I was glad I did. It was the cardiac transplant team calling to discuss their decision for Teresa.
Their decision was to not list her right now. Their concern was that some of the data in the Cath. was inconsistent . Some of the data showed her lungs were improving and might be able to accept a new heart BUT there was a lot of concern as to if there was enough vasculature and if it would be able to accept the new blood flow . So , they are not saying no, they want to wait and repeat the heart Cath. in a few months and at the same time do a cardiac MRI to also measure the blood flow to her lungs and if these 2 tests together are consistent then they will make the decision to list her.
Needless to say we are very disappointed but we are trying to be optimistic. If it were up to me (and being the control freak that I am ), I would be on the phone tomorrow shceduling the cath. and MRI trying to get it done ASAP! But I am going to wait on GOD. This is HIS plan and HIS timing . I know HE has something already planned for Teresa and we will have to wait, be patient and trust in God. God is always good in everything .
We got in the car ,put on a happy face and headed to NC.
Paw4People/Paws4Vets, what an amazing organization !
We had the honor of being part of a truly inspirational weekend . It was standing room only for the 20 children and Veterans whose family and friends came together to support them as they graduated with their service dogs.
The children's stories were all incredible. They have all been able to overcome so many obstacles with the help of their dogs , some physical but most socially and emotionally .
Emilia was so happy ! She even got up in front of the entire graduation and spoke about how happy she was to have Mayzie. Her level of confidence has increased drastically since Mayzie has come into her life. Her writing ability and vocabulary have also improved. She writes daily in her journal about Mayzie .
Next to graduate were the Veterans. Paws4Vets provides service dogs to Vets who return home from war and are faced with many life changing emotions and circumstances . Many of the Vets suffer from Post Traumatic Stress disorder . The dogs have been trained to help them emotionally and physically with their stress. Their stories of survival and triumph were awe-inspiring. To sit next to them and witness their pride and achievement was very moving . We were honored to be able to "Thank " them for their service to our country .
After graduation ,photos and a special dinner, the girls had some time to relax and look for shells on the beach . Even Mayzie loved looking for shells!
We are so grateful to everyone for your continued prayers, love and support for Teresa. We pray God will sustain her and keep her safe as she waits for HIS timing for her MIRACLE !
Posted by Our Family at 4/01/2012 06:02:00 PM