Our Place Called Home: Day 2 ECMO

Teresa "Fang Fang " Bartlinski

Teresa was born on December 25, 2006 in China. She was born with a very complex heart condition. In July 2010, GOD added Teresa to our family through adoption. We have been blessed with 9 wonderful children. Gods grace has woven us together as a family. Upon bringing Teresa home from China we unfortunately learned she not only needed a heart transplant but also a lung transplant. Her doctors feel she would not survive this operation. Please help us to pray for a miracle for Teresa's heart and lungs to be healed. She is a very special little soul who has touched so many lives around the world ...
I BELIEVE IN MIRACLES!

Wednesday, June 19, 2013

Day 2 ECMO

First I would like to thank our wonderful community an church for the beautiful prayer service last night . I was told it was amazing . This does our heart good . Our friends are amazing ! Teresa had a pretty good night . We had a few scary moments but she quickly fought back . She is really trying to be the boss of her new heart . Her liver and kidney function was very high so we need those numbers to come down . We are waiting for rounds . The talk is the left ventricle may not be functioning because of how small her old left atrium was ( almost none existent ) and thus is causing problems with how the new heart was connected . This could mean she would need another major surgery to correct. She still has very little heart function . Her body is trying to recuperate from the stress yesterday of cardiac arrest and CPR . She has a very high chance of seizures because of this so she is hooked up to a n EEG to monitor brain function for seizures .
I know god has thus and is in complete control . We are praying for a complete healing and for god to be glorified through Teresa s life . Our girl is fighting hard to live . She wanted so much to be able to ride her princess bike without her oxygen .
Thank you all for all the prayers love and support! We can not answer everyone but please know your prayers and love are carrying Ed and I .
We have also been blessed by wonderful doctors and nurses here at CHOP.
Teresa s nurse last night painted her nails pink . She has had her princess tiara on the entire time and they even let her go into the or wearing her gown and tiara . The hospital gown was just not princessy enough .
Please also pray for Teresa's HERO , her heart donor. I can not wait to listen to it beating .... Hopefully soon .

We also wanted to let everyone know that NBC will be airing a follow up to Tersea's story that was aired on Christmas eve. Our hope is that by doing so it will bring more people praying for Teresa's miracle and also bring more awareness to organ donation and the tremendous need for HERO'S like Teresa's HERO.

We are taking life minute by minute and are so grateful to GOD for allowing Teresa to have another day here with us even if it is just to hold her hand.

I BELIEVE IN MIRACLES!!!!

22 comments:

Laura said...: I have been constantly praying since I read about the transplant. May God also bless you, your family, and the health care professionals responsible for Teresa's care.; June 19, 2013 at 9:02 AM
ebony said...: God bless teresa and family; June 19, 2013 at 9:14 AM
Anonymous said...: From one mom to you my heart is broke. However, she's here still fighting and I believe she will over come this. Being a donor daughter, my mom donated and passed suddenly in 3/2011, and from the donor side let me tell you how we feel. First, you find renewed hope in seeing life in someone else thanks to the one you lost so we start to see it as not a loss but new life. That heart came to her selflessly and the heart is an amazing organ. I have faith her donor was as strong as she is and that's why she got it. When I found the people who my mother gave sight to it gave me hope again don't ever lose your hope no matter what. So, from a donor family to a recipient you all have just came into the greatest support system of your lives. God grew her in your alls heart just as he helped grow the one inside her now. Faith in him can undoubtedly move mountains.

Lots of love,
Kelly~ Donatelife and lifepoint advocate and public speaker in WV and SC.; June 19, 2013 at 9:19 AM
Unknown said...: Our prayers are with you. Our family could not make the prayer service but we said a family rosary for Teresa last evening and we'll continue to pray for her healing.; June 19, 2013 at 9:21 AM
patricia said...: Prayers dor teresa and your family. She is beautiful and to God all the glory! !; June 19, 2013 at 9:31 AM
Jan said...: Spreading the word and continuing to pray in SC. May God be glorified through this and may He grant you the strength, courage, and peace that you need in the minutes, hours, and days ahead. And may Teresa be the boss of her new heart!; June 19, 2013 at 9:54 AM
Linda said...: Thank you for your update. I'm one of those you don't know, but Teresa's story touches my heart. Last night, my women's Bible study (Greeley, Colorado), prayed for Teresa and added her to our prayer list for continual prayer. Blessings.; June 19, 2013 at 10:02 AM
Margy said...: Teresa is in our family's prayers as are your entire family. I have been praying the Express Novena to our Blessed Mother for her intercession for Teresa's full recovery. I have also been praying for Blessed Mother Teresa of Calcutta's intercession as well. God be with you and may his angels protect your adorable daughter.

Margy; June 19, 2013 at 10:24 AM
Ginny & Polly said...: God Bless Teresa and her beautiful heart. Many prayers in Gods ear for her.; June 19, 2013 at 10:35 AM
KTLgirl said...: I have to say Ann that I can't get your family off my mind. We've never met...I've just found out about Teresa's story since you went to CHOP for the transplant. I have a Hail Mary on my lips every few minutes the last couple of days for her. Please know there are many other strangers praying for your sweet Teresa! What a beautiful little soul.; June 19, 2013 at 10:36 AM
Sarah said...: I keep praying for your beautiful daughter and for her Hero's family.; June 19, 2013 at 10:39 AM
Kristine said...: Following your blog and sincerely pray that your little daughter soon recovers from surgery ..

We have a daughter from China which is operated in the heart and with serious subsequent complications - Emmy is 100% healthy and fresh today, so there is hope ..

Your little daughter has wonderful parents

So many thoughts from Denmark; June 19, 2013 at 10:42 AM
florence moulton said...: Oh I so believe in miracles also and know your little PRINCESS is going to be just fine as God I pray will bring her, her miracle real soon. God bless and hang strong.; June 19, 2013 at 10:45 AM
Anonymous said...: I am praying for Teresa and your family. Cried through reading all of these posts. You don't know me, doesn't matter. We adopted our daughter from China in 2006. My heart goes out to all of you. May God grant your healing prayer.; June 19, 2013 at 11:07 AM
Laine said...: We have been praying and will not stop!!!!! Teresa has been in our prayers and on our prayer board in our home for years...we have not stopped praying for your precious princess. We are praying for God to intervene in a big way and for Him to be glorified through all of this!!!!!
Continually lifting you all up in Alabama,
Love,
Laine--heart mama to Kevin from China; June 19, 2013 at 11:37 AM
Anonymous said...: Please know that God has provided many prayer warriors for Teresa. We are in the Chicagoland area. We will continue to pray that God bless her with restored health ASAP. Lily Grace is a miracle and God is in the business of miracles just as yesterday, today and tomorrow. We will continue to watch Teresa's journey. We are praying for you her family also. Hang in there! In His Grip
Sue and Dan; June 19, 2013 at 12:49 PM
LA said...: Hi Ann,

I believe in miracles too! Anything is possible for those who believe :):)

God bless and prayers are always flowing from FL.,
Lee Ann; June 19, 2013 at 1:02 PM
Kimberly said...: Praying for you and your daughter and her beautiful new heart. I am quite accustomed to the CCU at CHOP as we spent a few months there with my daughter. I am living very close to CHOP, PLEASE let me know if there is anything I can do for you all. Meals, a hot shower, someone to just sit and listen. I am here. ksseitz@gmail.com

-In Faith By Grace -Kimberly Seitzinger; June 19, 2013 at 1:52 PM
Esther Paris said...: I believe in miracles & continue to pray!; June 19, 2013 at 2:25 PM
Karyn in SC said...: Teresa's story is going out and bringing Him the glory even now. We have never met, but I and many others you haven't met, are lifting her up to her Father. So glad for the update!; June 19, 2013 at 5:12 PM
Vicky said...: Praying from Alabama!; June 19, 2013 at 5:20 PM
Teresa McDermott said...: We are in Ellicott City and our daughter Julie Teresa, also born with HLHS and treated at CHOP, passed away at 18 while waiting for a new heart. Her gravestone up at St. Johns Lane reads, "I love you more."

My husband and I are praying for Julie to intercede for Teresa to our Lord. There are so many connections! And Julie Teresa is a good nag!! so our prayers are in good hands. Keep the faith - take a breather walk over at Penn... and our love and prayers are with you all.

Pat and Teresa McDermott; June 19, 2013 at 9:07 PM