Last night Teresa had a little set back . Her blood pressure and oxygen were dropping too low so her evening dose of medicine had to be lowered.
This morning she did much better. Her blood pressure was stable all day and her sats even reached 82 (with oxygen).
This is good news and we hope she will be able to reach the maximum dose with out any further side affects.
Her liver is also being affected by her heart causing it to become enlarged. The pressure in her heart and lungs are so high the blood from her liver can not return and is backing up in this organ .
Today Lucy and Mary had their ballet recital so Alex came to the hospital to stay with Teresa while Ed and I ran to the recital.
Sitting at the recital all I could do was worry about Teresa in the hospital , even though I knew she was stable and Alex was texting me every 30 minutes with an update.
It's hard to balance the feelings of happiness while at the same time the worry for another childs' life.
Life goes on even when their is pain and suffering in it.
Please keep in your prayers the little girl in the room next to Teresa. She is Gemma's friend from the infusion clinic. She is having a very difficult time right now as she prepares for an upcoming surgery .
Teresa really seemed to enjoy some one on one time today with Alex. He said she talked his ear off!
13 comments:
What a terrific big brother! You are all in our prayers--and Teresa's roommate too.
Thanks for keeping us updated. Many prayers are coming your way!!!
Kathie in NY
Praying, praying, praying.....love you all!!
Amy D.
You are an amazing family. Thank you for updating us on everything. Prayers are being sent up for you all.
Deb G
Hugs - glad that things stablized - and prayers that things continue. Oh - and Alex - you're cool - and a good man!
hugs - aus and co.
I am good friends with Robin Magana and have followed the story of your sweet girl for quite some time now. My prayers are with your family.
Ann,
Praying and praying for all of you!!!
Sending you love, hugs, prayers and HOPE! I wish I lived closer so I could do something to help you.
Please know I am praying for your sweet girl in St. Louis. She is so loved!
Love and blessings,
Robin
So nice tha Alex was with her! Keeping Teresa and the rest of your family in our prayers... as well as the little girl you mentioned. It is hard to fathom all the suffering and pain that so many of these precious little ones endure. Hang in there and know you're in our thoughts and prayers! <><
Blessings and hugs,
~Tanya
We're praying! I love that Alex spent some time with her, how precious!
I loved hearing how Alex was texting you ever 30 min. What a great big brother!! Prayers continue for precious Teresa. Still asking God for miracles for her.
We have been and will continue to pray for your sweet Teresa EVERYDAY!
Hugs from Alabama....
Your family has been in my thoughts many times today. You can see her shining spirit in those smiling pictures you have posted. I'm so happy that she has a family during this difficult time. I know we don't know each other, but my thoughts are truly with you and your family.
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