Tuesday, May 24, 2011
Teresa is having an OK week . Since coming home from the hospital she has been VERY tired. She is sleeping 15 hours every night and taking a nap every afternoon. I don't feel the increase in her medicine has had any affect yet. We will go back to CHOP next Friday to see.
This afternoon I heard back from Childrens Hospital of Pittsburgh . They were reviewing Teresa's medical information to see if they could offer a different diagnosis or alternate treatment. Unfortunately they also agreed with Hopkins, CHOP , Boston and Mayo.
We are trying to stay positive but at times it seems impossible. I keep wondering what is Gods plan for her life. So many miracles have happened through Teresa already . So many people have emailed me telling how God has moved their hearts to adopt, how Teresa has touched their lives, how they have returned to God through Teresa, how she has given their lives new meaning , how she has given them faith ... She has touched so many lives. I am so grateful for all of these miracles but I still want Teresas' miracle. I want her heart and lungs to be healed. If this is selfish well than I guess I am being selfish . I know we are not made for this world, but I need more time with her in this world .
(The photos are of Teresa in Mary's First Communion dress. She said she is not taking it off until she can marry Jesus. She has given up ALL of her princess dresses for this ONE ! Even Belle.)
Posted by Our Family at 5/24/2011 09:45:00 PM