Friday, April 29, 2011
It's always nice to have your best friend with you !
Today Gemma had her blood transfusion . She had a great month but unfortunately her hemoglobin dropped too low and she will have to go back to having her transfusions every 3 weeks from now on . Her body could not handle the 4 week schedule. Her ferritin was also at dangerously high levels .
We met with the head of Pediatric Hematology at Hopkins ( for the first time, we usually see another Doctor but he happened to be on call today ) and he discussed her best options.
He asked if we had considered a bone marrow transplant . After explaining her adoption to him and the very remote chance of even finding a matching biological donor , he then switched to plan B.
She will have to stay on the 3 week transfusion schedule, increase her daily infusion (for chelation ) from 5 days a week to 7 , and possibly have a spleenectomy if she does not show improvement.
If any one knows of a way to find birth parents or biological family members of children adopted from China please email me . Right now Gemma is doing great and not in a crisis but the continual blood transfusions and high ferritin levels over time damage the heart , liver and spleen . Gemma has already developed some liver damage .
Last week the girls and I were sitting on the front porch waiting for Gemma's weekly infusion medicine to be delivered. As the delivery man came up to the porch Teresa looked down at his shoes ( Like she does with EVERYONE ) . I was a little afraid of what was going to come out of her mouth next. " Oh Mommy I luva his shoes " . He started laughing and thought this was quite amusing . He had on old black work boots . I don't think he had ever had a positive comment about his shoes before .
After he left I asked her why she liked his boots so much . " Because they are just like Gaston's !"
Her favorite movie and Princess are Beauty and The Beast . Even though she did not like Gaston because he was so mean to Belle , she loved his shoes .
Teresa had another great week . She had a cold but it only lasted a few days. I am amazed at how well she responds to every little bug that comes her way . I become very nervous every time she sneezes because it always turns into a cold and the Doctors have explained to us how dangerous an infection could potentially damage her already fragile health.
Thank you everyone for continually praying for Teressa . We are so blessed to have so many fantastic caring people always lifting her up in prayer .
Posted by Our Family at 4/29/2011 05:59:00 PM