Sunday, March 11, 2012
What was suppose to be a routine blood transfusion for Gemma last Monday was a little unusual . I could tell her Hemoglobin was low from the way she looked and was acting. It ended up being the lowest it has been in 2 years . She also has lost 4 pounds in one month . We are not really sure how or why that happened . Then 1 hour into her transfusion she started having difficulty breathing and became very listless. Her transfusion was stopped and she was watched closely . After a few hours she was feeling much better and we went home . So this week we are headed back for another transfusion because her hemoglobin is still very low . Hopefully this week will be uneventful .
This past weekend Hopkins sent the girls to a Princess Party at Port Discovery . The girls loved meeting all the real princesses and having lunch with them . They then had a fabulous time playing in the Museum. Guess who LOVES to surf or I should say who wants to learn to surf. Miss Gemma Rose ( she is a little fish all summer playing in the pool . She loves the water .) Right now her favorite movie is Soul Surfer . The part where Bethany teaches a little girl to surf is her favorite scene because the little girl looks just like her . When that part comes on she jumps up and down yelling " that's me , that's me " . ( the child does actually look just like Gemma ) .
For Teresa's heart transplant we are one step closer . We found out that our insurance will cover the consult on Friday . We are still waiting to hear if it will cover the entire transplant , but this is at least a small step in the right direction . Friday we will meet with the Nurse Practitioners, Social Worker and Psychologist. Teresa will have 1/2 the labs drawn ( the other 1/2 will be drawn next week . It is too much blood to be taken at one time )and she will have an ultra sound of her vessels in her groin and neck . Next Friday we will meet with the other half of the Transplant Team (Cardiologists, Surgeons , Transplant coordinator , Dr. Hanna and more testing ). In the meantime we are reading up on ALL the material they have sent us on transplants .
We are one step closer !!!!!!
Thank you all for your continued prayers !!!!
Posted by Our Family at 3/11/2012 07:32:00 PM