Sunday, March 4, 2012
Friday I talked with the Transplant Team Coordinator for Teresa's heart transplant . We will meet with the entire team very soon . There is So much information to think about and process. I am feeling a bit overwhelmed by it all. I can hardly believe we are at this point. Only by Gods love and mercy have we gotten here. HE has perfectly orchestrated every step. So many more things need to fall flawlessly into place but I know in Gods time they will.
Five things we are focusing our prayer on ;
1. For Teresa to be accepted for a Heart transplant. She will need to go through a lot of testing to see if she qualifies.
2. For our insurance to cover the transplant and all medical care 100%.
3. For God to provide a loving, caring Nanny to help take care of the girls at home while I am in Philly for weeks, possibly months with Teresa and the provisions to afford her salary .
4. For Teresa to stay healthy and her heart to stay strong as she waits.
5. Peace- Peace for the family that will lose their child and give Teresa life.
Tomorrow Miss Gemma Love will have her blood transfusion and then on Tuesday she will have an MRI under general anesthesia. We are praying she does not have any further damage to her liver or heart and for her ferritin levels to have come down (she is still over 3,500 after 2 years on meds. to lower it . Normal levels are between 10-300.)
Emilia went shopping with Mayzie this weekend ! They both did fantastic at the mall . Mayzie and Emilia will graduate on March 31st., then she will start having sleep overs and eventually move right on in to our crazy life. She will go from a very quite house to one filled with noise , laughter and a lot of hugs and kisses for her all the time . All the girls can not wait for her to come home permanently .
Emilia' next surgery has been scheduled for April 25th. She wanted to have her arm done first instead of her leg. Her Doctor felt this would be fine since both of her legs are stable right now. He will lengthen her arm and reposition her hand . She will be in the external fixator device for almost 6 months . The one good thing about this is she will still be able to go swimming all summer with it on ! Mayzie will be there with her through the surgery , recovery and many months in PT.
The one major thing I have learned over the past year and a half is Patience. I am the type of person that wants things done yesterday . Having to wait ,learn patience and give up control has been pretty difficult . But Teresa's Miracle is "IN Process" in Gods time , not mine . There were so many lessons we needed to learn first and God is making that very clear to us now . Without patience and perseverance I don't think we would be ready for this next step in Teresa's journey.
Posted by Our Family at 3/04/2012 06:33:00 PM