Wednesday, September 14, 2011
Look out Pre-School , here I come!!!!
Today Teresa started 4 year old pre school . We prayed about this day for a long time. Should we let her go or keep her home and not have her exposed to so many viruses. Ed and I both agreed there was no holding her back . She wanted to go and be like everyone else ! She was SOOOOOOO excited !
Next Friday we head back up to CHOP to have a full day of pre-op testing done to make sure Teresa can handle the anesthesia for her heart cath. She is scheduled to have her heart Cath. on October 7th. On the outside she looks fantastic and she has been feeling great with lots of energy . Her oxygen has been holding at 75. But on the inside , that's a different story . When I hold her , her little heart feels as if it is coming through her chest , beating so hard and fast . This has been one of the hardest things for me to overcome because it is a constant reminder of how fragile her life is . I can only imagine what this must feel like for her continuously .
We are Praying ,Praying , Praying ...that on October 7 we receive good news. It will be one year that she has been on the top doses of all her heart medicines. We need the progression of damage to her heart and lungs to be slowed down (the med. can not cure her heart and lungs but can only slow down the deterioration . Surgery is the only cure but she is inoperable). We also have full faith that GOD can heal her heart and lungs completely ! This is the miracle we are praying for.
Posted by Our Family at 9/14/2011 01:05:00 PM