Tuesday, March 8, 2011
Yesterday I spoke to a wonderfully caring Doctor from Boston . He took the time to review Teresa's medical records with his colleagues and discuss her options . We spoke at length about Teresa's heart and lungs and unfortunately he agreed with Hopkins , CHOP and The Mayo Clinic. She is inoperable, her prognosis is not good, just a matter of time . We discussed what will happen and how to handle it . I can't tell you how disappointing this past week has been . Teresa is so full of life right now and she just LOVES everything and everybody and to think that she will just keep deteriorating is so sad . He also agreed that he did not recommend trying a heart/lung transplant because the success in children is EXTREMELY low .
For now she continues to think she is well ,nothing is wrong and life is wonderful .
We will continue to pray for her "Miracle".
My fear is :
The Miracle will not be the CURE... her life will be the Miracle .
We have not given up hope , just very sad.
Posted by Our Family at 3/08/2011 04:40:00 PM