Last night was better. She slept through the night with only a few desaturations below 60. Teresa is still on a high flow of oxygen and does not have the energy to move around too much . Just getting up to use the bed pan makes her levels drop below 60. She is eating a little and is drinking pretty well. From Wed. to Thursday she gained almost 2 pounds in fluid. Tonight when she was weighed she was back to her normal weight . She is improving very slowly but at this point any improvement is great news . I'll take it. We are hoping she will be able to return to her baseline before she became sick and that her tricuspid valve does not continue to leak so badly .
The plan now is to get her oxygen above 75, have her lungs free of fluid , tricuspid valve to stop leaking soooo much and to start her on the new medicine to help her breath better and not to be so blue. When this happens she can come home on oxygen and a monitor.
The Doctors are hopeful the medicine will lower her pulmonary pressure maybe just a little . The one Doctor kept saying he didn't want us to have false hope because it might not work . I told him that he did not know Teresa , she is surrounded by so many miracles already , that we were VERY optimistic in this medicine completely lowering her pulmonary pressure back to normal and then to be able to receive the heart transplant. He looked at me like ...well OK , i don't really care what it was he was thinking of this plan because I know God is capable of this plan and so is Teresa. She is a survivor, fighter and a perfect little angel with such a will to live .