The Bartlinski Bunch

" Teresa "

" Teresa "

Teresa "Fang Fang " Bartlinski

Teresa was born on December 25, 2006 in China. She was born with a very complex heart condition. In July 2010, GOD added Teresa to our family through adoption. We have been blessed with 9 wonderful children. Gods grace has woven us together as a family. Upon bringing Teresa home from China we unfortunately learned she not only needed a heart transplant but also a lung transplant. Her doctors feel she would not survive this operation. Please help us to pray for a miracle for Teresa's heart and lungs to be healed. She is a very special little soul who has touched so many lives around the world ...
I BELIEVE IN MIRACLES!

Monday, February 28, 2011

New Found Friends




Teresa woke up this morning and was feeling a lot better. She looked so much better than she did Sunday .

Today we met an amazing family from PA . They have been following Teresa's journey on our blog. After going to Hopkins for doctors appointments they stopped by to meet Teresa and give her some " Goodies". Teresa was so excited all morning waiting for them to arrive.

Thank you Amy , you ,Sam and Hope brightened Teresa's day ! Your generosity was greatly appreciated ! Teresa has not let go of Cinderella ALL day .

One of the greatest gifts we have received on this journey with Teresa is AMAZING friends ! Their generosity , love and support for Teresa has helped us as we carry this tremendous pain in our hearts .

Thank you D'Ann and Amy ! You are angels sent from God .

Sunday, February 27, 2011

Prayer Weekend


Thank you everyone for praying for Teresa this weekend !
This past week has been very sad for us . Finding out Wednesday that Teresa's heart is failing even more has been very difficult. I feel even more driven now to fill every minute of every day with love and happiness for her .
This weekend in church her name was mentioned in the prayer for the sick . She heard her name called and she turned and looked at me with a very puzzled expression and said , " Why are they praying for me , I am not sick ". She does not know or feel she is sick . When I look at her face I can see it in her eyes how much she has deteriorated . She looks so tired .

Even though this past week has been hard for us , she keeps her little "Princess " smile going . Today she was Cinderella.

Wednesday, February 23, 2011

Not Good News

We are admitted , we are going home, we are admitted , we are going home . We are finally home ! Not a good day .


This morning we went to see Teresa's cardiologist at Hopkins. For the past 3 weeks she has been holding onto a cold that would not go away . I could tell something was wrong , she just hasn't been herself . The echo revealed her already severely damaged Tricuspid valve was leaking even (dangerously )more. This is causing damage to her liver and fluid retention in her face. After a VERY long day of testing it was decided we would go home and closely monitor her and speak again in the morning to go over the blood work . She will start 2 new medicines , one to eliminate excess fluid and one to help her heart function better. Not the news we had hoped for .

To all of Teresa's prayer warrior friends , people from all over the world that pray continuously for her , people we have never met but feel called to pray for her , THANK YOU !!! Your prayers and words of wisdom and love mean so much to us . Your prayers mean more to us than you will ever know . Thank You !

Tuesday, February 22, 2011

Snow Day





Teresa wanted so badly to go out and play in the snow today ... but she wasn't feeling too well . She unfortunately needed oxygen most of the day . We are going to the Doctor tomorrow .

Monday, February 21, 2011

Monday

After I took this photo and showed it to her she was mad because her hair did not look like a "Princess" . This is how puffy her little face and eyes have been , but she still LOVES to smile for the camera !

The kids were off of school today and I was hoping to take them to the park but the weather has turned very cold and we are now expecting snow . Only 4 more weeks until spring .

Teresa is still having trouble from this cold that won't go away . Her eyes and face are puffy and she is starting to cough a lot . This morning her oxygen level was again in the upper 60's . We will go back to see her cardiologist on Wed. . We are trying to stay positive but when I look at pictures of her from just a few months ago and then now , she looks so different to me . Her energy level has also slowed down . She stops often throughout the day to lay down and rest.

We are still trying to squeeze every ounce of happiness into every day for her . She tries so hard to remain a Princess even when she is not feeling well . Her favorite princess this week is Cinderella .

The Day Of Prayer for Teresa on Sunday Feb. 27th. has turned into The Weekend of Prayer and fasting for Teresa. We would be VERY grateful to anyone that would like to take a few minutes this weekend and storm heavens door for her .

Saturday, February 19, 2011

Happy Chinese New Year !






This past week was so busy ! The girls had 6 Doctor's appointments in 5 days. I think that was a new record for us . Everyone is doing great although Teresa is still holding on to this cold that won't go away . She has had it for several weeks now and it is starting to make her oxygen level drop into the upper 60's almost everyday now. She's needed oxygen several times over the past week and has to take many breaks through out the day to catch her breath . She also looks to me like she is retaining fluid , her eyes and face are a little puffy . If this doesn't improve soon , we will be headed back to the Doctor.

Today we celebrated Chinese New Year with our local FCC group . The girls really enjoy this every year . This was the first time for Teresa and she loved the day . She liked everything except The Monkey King . She wore her Chinese "Princess Dress" as she called it .

Thank you for continuing to Pray for Teresa ! On Sunday Feb. 28th. We will have a day of fasting for Teresa . Thank you Bridget for this great idea . Please join us in this day of prayer for Teresa .

Sunday, February 13, 2011

7 Months !





Seven months ago today we adopted a "PRINCESS" in China !!!!!
Oh how our life has changed over the past 7 months .This little "Princess" has taught us so much about life. I have to be honest and say ,that some of the things we have experienced in the past 7 months I could have done with out ( well maybe a lot of things ) . This journey we are on has been very difficult at times but it is the one God has set before us to follow . We have been so blessed to have the privilege to love this "Little Princess".

Saturday, February 12, 2011


"To Do List "




Today we crossed off one more thing on our "To Do List " for Teresa . This is a long list of normal childhood experiences i would like for Teresa to have the chance to do. It has things on it from going to the zoo to going to Disney World, from making a Build A Bear to riding a bike . So today we went to Build a Bear for Teresa to experience the fun of creating a new friend to love . Lucy generously offered to give Teresa her Christmas money to help pay for it . She really loves Teresa and couldn't wait to help her.

Teresa picked a white bear with pink and red hearts . She named her "Princess Hope". The most exciting part of the day for her was picking out the SHOES. She LOVES shoes . She is really starting to have an obsession with shoes.

Last week while we were at Sinai Hospital having Emilia's Cast removed , she commented on the Child Life specialists shoes as she came into our room. "Mommy I lova her shoes" . Yesterday while we were at Kennedy Krieger for Gemma's Speech class she noticed EVERYONES shoes . As we walked into the elevator there was a woman standing there with purple sparkly shoes. Teresa started jumping up and down saying" I lova her shoes " . The woman thought this was hysterical and asked her if she would like to touch them . Then today at Church as we were leaving ( in the quietest voice she could contain ) she said " Mommy come here I have to show you something " . She led me back up to the front of the Church where an older woman was kneeling and praying . As quiet as she could she said "Look at her shoes ". They were gold. The woman stopped praying and turned and looked at Teresa to see who was interrupting her prayers. I had to explain to her that she was in love with her shoes. This woman was so kind to her . She told Teresa "Thank You " and that she also loved Teresa's shoes .

I am getting a little afraid of going in public places now for fear of what she might say if she doesn't like someones shoes. She only gets to see me in Tennis Shoes.
She keeps me smiling all day long with her funny comments.

Wednesday, February 9, 2011

Emilia's NEW leg




For the first time in 12 months Emilia is free from all casts,braces and external fixator devices !!!!

It was a long year but so worth the wait. She never complained about the pain or not being able to run and play . Her only request was to have a pair of sparkly shoes and to be able to ride her bike .

In a few years she will have her right leg lengthened again. ( this leg will never grow). Her next surgery on her left leg will be in a few months. This leg was totally rebuilt 2 years ago with the ability to bend at the knee. Over the past couple of years it has started to lock up and can no longer bend. This surgery will be a major one requiring a 7 day hospital stay with intense PT 5 days a week for 4 months and 3 hours of PT at home to keep the knee flexible . We would like to wait until Mayzie (Emilia's Service Dog )comes home to have this surgery because she will be able to help Emilia with the PT . She will also be a huge emotional support for her and a big distraction while at PT. Dr. Standard assured Emilia that after this surgery she would definitely be able to ride her bike ! That is all she had to hear , she can not wait !

So now the problem is trying to find the right time to fit this surgery in to an already very hectic schedule . We would also need to be able to afford a full time babysitter for a few weeks who would feel comfortable taking care of Teresa while I was in and out of the hospital with Emilia. I have not left Teresa with a sitter for longer than a few hours . I don't feel comfortable leaving her for long periods of time because her health is so fragile and she can deteriorate rapidly .

Praying for God to guide us in the right direction .

Sunday, February 6, 2011

Min Min Has A Family !!!!!



Min Min has a family !!!!!
This is Teresa's best friend from the orphanage. This little girl really touched our hearts while we were in China . She too has a very complex heart condition , but what really was amazing about her was how desperately she wanted a Mama. She carried Teresa little photo book around (of photos of our family we had sent Teresa) looking at every photo and saying Min Min's mei mei ? Min Min's baba? She wanted us to take her home too. This broke our heart having to say good bye to her . As soon as we came home we started advocating for her to find a home . Teresa still calls her on her play phone everyday and talks to her . If we could have we would of adopted her too , but GOD had other plans . She has a Family now !!!! This family is having her adoption expedited to bring her home as soon as possible so she can get the medical care she needs for her heart before she has irreversible damage like Teresa . This means they have to come up with all the adoption fees very soon . Please go to their blog to see if you can help them in any way .

bringingminhome.blogspot.com

Bringing Min Home . blogspot.com
or click on their button on the right .

We are so happy for Min Min and her family !!
(Teresa still calls her Ming Ming)

Saturday, February 5, 2011

Annabelle




The girls broke the news to Grandpop the other day . "Can we keep Annabelle? We will pay you our allowance for one year. " How could Grandpop resist those sweet little faces. He said " Yes". We will see how that works out . She is the sweetest little dog. She wants to be held ALL the time . I think Mary is going to have to move her bed permanently into the family room. She has been sleeping in her sleeping bag with Annabelle every night . We will eventually transition her into her crate . This is where she will hopefully sleep all night , but for right now she and Mary are enjoying snuggling together !

Thursday, February 3, 2011

Birth Time ?




The other day in the car Lucy and Mary were having a conversation about Birthdays. They were discussing how they each would like to celebrate their Birthdays this year . This was the year they each could have a friends birthday party . ( We alternate between a friend party and a family party because with 9 kids and 3 birthdays in one month ,it was too expensive ) .

Lucy was still undecided on what "Themed" party she wanted this year but Mary was very specific about the type of celebration she wanted. As I listened in on their conversation I wasn't sure where it was headed . Then as Mary was giving all the details of her party to Lucy , she turned to me and said " and Mom what time was I born because I have to start my Birthday celebration at exactly the time I was born ? Oh, wait a minute ,YOU WERE NOT THERE..." I could see that she had stopped to think and then she said , " Could you look at my adoption paperwork to see what time I was born ?"
I told her of course I would and then tried to explain to her that even though I was not there for her birth , she was always in my heart .

I wasn't sure what to do about her birth time because I knew we did not have this information . She knew that Lucy had a birth note from her Birth Mother with her actual birthdate and birth time on it . Her birth Mother even named her but Mary did not have a birth note from her Birth Mom . The only information we have from Mary's birth is , she was born with a severe cleft lip and palate . Her Birth Mom could not feed her and when she was found she was severely malnourished and close to death . Because of this her permanent teeth are now coming in without the enamel . She has already had to have several of her teeth capped to try to preserve them .

I did not want to disappoint her so I thought about what birth time I could make up and give to her . I decided to take my birth time and tell Mary that this was the time she was born also . I told her even though I could not be there for her birth , this was something we both had in common . She looked at me and said, "really 8:16 ? wow that is great . Now we can start celebrating at 8:16 . " She thought for a minute longer and said, " I am so happy we share the same time , this is great. "

She decided that on May 19th. at 8:16am. , she was going to change her "number" (age )from 8 to 9 .
I wish I could be so happy on Dec. 2 at 8:16am. to change my "number" also .

Yesterday , Gemma had her blood transfusion . She did very well . She was able to hold onto her blood for 4 weeks this time . Even though her hemoglobin level was very low , it was still high enough for her to make it 4 weeks. So next month we are going 4 weeks again . Hopefully this will become her norm . Her results from her Ferriscan were not so good . We were hoping for an improvement from last year but unfortunately her liver iron concentration increased along with her iron levels in her spleen . Average liver iron concentration is around 0.17, hers are 33.4 We are waiting to discuss with her Doctor the best treatment .

Teresa is still loving EVERYTHING ! (especially being a princess ). She is the BOSS of everyone . Today when I asked her who she was ,(this is a daily event . Every morning if I call her Teresa , she quickly sets me straight . Most days she is " Princess" but on a few rare occasions she will be Teresa, Fang Fang or Mommy ), today she was Princess. She would sleep in her princess dress if I let her . She takes it off only when she is getting into bed and puts it next to her bed and as soon as she wakes up she immediately puts it on .

Emilia will hopefully have her cast off next week . She is so excited .

Lucy is feeling much better and off all her pain meds.. We will find out in a few weeks if the surgery was a success when she has more renal testing done .

The girls are all getting very excited about Chinese New Year . We will celebrate this year with our local FCC( Families with Children from China) . We always have such a fantastic time at this event .

Wednesday, January 26, 2011

snow



Grace had so much fun building this HUGE snowman with her friends !
Gotta love the winter !

Poor Gemma is still not feeling well . This morning I went upstairs for 2 minutes to dress Teresa and when I came back down this is what I found . Gemma asleep on the kitchen floor! She is so tired from the pneumonia and with her hemoglobin also being so low it is causing her to have very little energy .

Teresa had a great day today . She stood at the front door watching the snow fall with so much excitement. She says " I luva the snow , I luva the snow ".

Tuesday, January 25, 2011

School ?


We have been debating whether or not to send Teresa to pre school next year . we have been advised both ways , one Doctor said "Let her experience everything and don't keep her in a bubble " another said " I would advise against exposing her to all of the germs that are in pre school class rooms. " She watches every day as her sisters go to school and often asks " When can I go to school ?"

Pre school registration for September is taking place now so we have to make a decision soon . I don't want to expose her to viruses unnecessarily but at the same time I want her to experience the same things other children do .

So today we went and visited a pre school class . She was so excited that's all she talked about all day . "Her school" was so much fun . She couldn't wait to get home to tell Gemma all about it . Seeing how excited she was made the decision so much easier . Now the hard part is having her wait 8 months for it to start . As we drove to school this afternoon to pick up the girls she started yelling "There's my school , there's my school. Can i go again ?"

Lucy - I think I spoke too soon on Saturday about Lucy and how she was doing from her surgery . Saturday night she started having severe bladder pain and the pain was radiating to her kidney , she then started vomiting . After speaking to her Doctor he wanted her brought to the ER to make sure she did not have an infection or blocked ureter . After many tests it was discovered that the surgery had caused severe swelling in her bladder and kidney and this was the cause of the pain . So they increased her pain meds. and antibiotics and we are keeping a close watch on her .

Gemma- still no results from her ferrascan . But poor Gemmma has another infection . She started on Saturday night with a very high fever . She is also coughing terribly . I took her to the doctor today and she has pneumonia and a ear infection . She is scheduled for her blood transfusion next Wed. .The last time she was this sick her Hemoglobin dropped one point every day . Infections and fevers really make it drop fast . So we are keeping a close eye on her levels .

Teresa - was so happy today going to school . She loves to experience new things and this was so much fun for her . Unfortunately she must have sneezed over 100 times today and her nose has started to run . We are praying that she is not getting sick or catching Gemma's virus .

Thank you for keeping her in your prayers !

Saturday, January 22, 2011

Lucy' Surgery

Yesterday Lucy did very well with her surgery to repair her ureter in her bladder/kidney . She had a non invasive procedure done using deflux which helps to relocate the ureter to the right position and stop the reflux. She was born with a solitary kidney which had a grade 5 reflux ( the worst kind ) from the bladder leading into the kidney . Over the past 3 years it has improved to a grade 3 reflux .( this is still not good but better than before) . In One month she will have more renal testing done to see if there was any improvement , if not she will then have the more invasive surgery to reposition the ureter.

Gemma had her ferrascan last Tuesday and did great . We will have those results on Wednesday . We are really hoping her iron levels have dropped and she does not have any more damage to her liver .

We had a new button made for the blog for Teresa. It is on the right side . If you would like to post it and help spread the word of Teresa's miracle , we would be very grateful ! Thank You

Thursday, January 20, 2011

Facebook




Thank you Tary for creating the facebook page.
"Praying for Teresa B"

http://www.facebook.com/home.php?sk=group_123147934420958

The prayer cards will be mailed out shortly to everyone who asked. Unfortunately my scanner is not working right now and I can not scan them in , so if you would like some just email me your address . Thank you (mykidsmom1986@yahoo.com)

For the past 2 weeks , Annabelle (Grandpops new puppy ) has brought Teresa so much happiness . Is there anything better than puppy kisses with puppy breath ?

Tomorrow , Lucy is having surgery on her kidney . Please pray for no complications and a speedy recovery .

Wednesday, January 19, 2011

Prayer Cards

Thank you everyone for requesting prayer cards for Teresa. Right now my scanner is not working so I can not scan them in and my boys are away at college . ( they are my computer helpers. I am not very good with the computer). Anyway, If you would like them just send me an email(mykidsmom1986@yahoo.com).

Someone suggested a Facebook page -"Pray for Teresa". I think this is a great idea, but once again my computer help is gone and I am not quite sure how to create this . So if someone would like to help me with it , Please just let me know.

Also "K" asked why Teresa would not be a candidate for a heart lung transplant. I am sorry for not explaining this better.
As the Doctors explained it to us; A heart transplant is an operation that children do very well with and have a very high chance of surviving. A heart and lung transplant is a very hard operation for children to survive. children with cystic fibrosis survive this procedure better than children like Teresa with High pulmonary pressure . Several Doctors have advised us against having this done . They ALL felt she would not even survive the operation . Her Heart and Lungs are so weak right now that she could not tolerate the operation .
She needs a miracle !

Monday, January 17, 2011

Teresa's Miracle

First let me say " Thank you " to everyone. Thank you for all of the prayers, kind words and unconditional love and support. I know everyone has been praying for Teresa and I want everyone to know how VERY grateful we are to you all !

I really debated about whether or not to write this . I felt I would not be doing everything I could for Teresa if I did not.

When we adopted Teresa we promised to do everything we could medically to help her . We knew she was our daughter from the moment we saw her photo. (This is a very long story that started many years ago that is filled with unbelievable turns of events that GOD orchestrated. I promise to post this story later). For the past six months Teresa has stolen our hearts.

Going to CHOP last Friday and hearing all over again how very ill she is has brought back emotions that I had put aside. With the daily routine of life it is easy to get caught up in these routines and not face reality . I have been so busy with the Holidays , doctors apt., surgeries, moving 2 kid back to college that I have been in denial about Teresa. She has been doing OK, she had 2 illnesses but she seemed to come back OK from them and she is looking OK and gaining weight . Everyone says how great she looks. So it has been easy to be in denial about her health . Maybe she will beat this , maybe she will live a very long life, maybe, maybe maybe...
But on Friday hearing the Doctor say "Yes, this is good news her pressure has come down a little, BUT, her heart might not make it another year" , was like a slap in the face that knocked me back into reality .

So this is why I am writhing this post. I need your help . For the past six months I have researched every detail of Teresa's heart and lung condition . We have taken her to the best Doctors, we have gotten second and third opinions . I have not left one stone unturned medically for her . I promised six months ago to do everything medically possible for her , and we have. Only GOD can save her now ...if this is HIS will. I love Teresa with all my heart but I know GOD loves her more and I know He has a very special plan for her life. Her entire life so far has been a miracle .

I am asking everyone, from one Mom to another , one friend to another , one adoptive parent to another ... to PLEASE ASK EVERYONE YOU KNOW TO ASK EVERYONE THEY KNOW TO PLEASE PRAY FOR A MIRACLE FOR TERESA'S HEART AND LUNGS TO BE HEALED. PLEASE PRAY ,PRAY , PRAY !

I am no longer knocking on Heavens Door , I am banging on Heavens Door.
I want God to be tired of hearing the name , "TERESA ".

Pope John Paul 2 needs one more miracle to be canonized. This is who we are asking to intercede for Teresa to be healed. If you are not Catholic , please feel free to pray in your own families religious belief. We are praying to the same GOD and we are grateful for ALL prayers !

Please help us pray for this miracle by telling everyone about Teresa's story .

I am making prayer cards for Teresa. If you would like me to mail you some to give out please email me -mykidsmom1986@yahoo.com

I am doing this because I have to know that I did everything medically and spiritually possible for Teresa.
Thank you for every ones help!
"Where there is great love , there are always great miracles" Mother Teresa

Friday, January 14, 2011

6 months Home

We finally arrived home on Thursday !!! What an unbelievable week . Thank you to everyone for your offers of help .

Today we headed up to Philadelphia for Teresa's exam at CHOP . We were really praying for some good news and guess what... we got some , well at least a little and that's better than none.
After all of the testing we met with Dr. Rychik and Katie RN( she is head of the single ventricle survivor ship program ) and it seems that the sildenafil is helping to stop some of the deterioration of her lungs. It is not improving the damage already done but the good news is it is helping a little to stop more damage from occurring and that is great news . Her medicine will now be increased to almost double the strength and rechecked in a few months . We are praying that her pulmonary pressure will continue to drop.If her pulmonary pressure does not drop she will never be able to have surgery on her heart . Her heart is so damaged that Dr. R does not know if she will survive another year because her pulmonary reserve is already so low .
The other good news is she has gained almost 7 pounds and is now 36 inches tall!
Her oxygen was 78 today and her color was good .
The other suggestion was for her to start her Make A Wish . With her feeling good right now she would really be able to enjoy it . This is such a sad process to think about but something I don't want her to miss because she will really enjoy it. I already know what she will wish for , to be a princess. A few weeks ago I called her to come and eat and she turned around , put her hand on her hip and said " I am not Teresa , I am not Fang Fang, I AM PRINCESS " I guess the princess has spoken.

We are very grateful for this little bit of good news . Please continue to pray for her pulmonary pressure to decrease and for her to stay free of any viruses or other illness.

Monday, January 10, 2011

NO SALT TRUCKS!!!!!!




Does it ever snow in the south? Apparently only when we arrive and guess what ...there are no salt trucks, snow plows or salt domes in the south !!!!

We moved Alex into school on Sunday and planned on heading back home on Monday morning, but Alabama was blanketed in snow and ice. We waited until late afternoon Monday to leave because the roads appeared to be more passable. We headed north for 70 miles and then the roads were totally impassible , totally covered in ice. Cars were laying in the ditches and a tractor trailer had jack knifed across the road. The exit ramps were covered in ice . We finally made it onto the ramp and found a hotel to stay in . The hotel unfortunately had no restaurant and all the local restaurants were closed .
What an adventure. What should have been a 14 hour drive home has now turned into a 3 day nightmare . We are praying the roads will be passable tomorrow.

Teresa has done very well on this trip .We packed One whole suitcase full of her medical equipment ,medicine and oxygen. I wasn't sure about traveling so far in the car with her but she loves watching her movies and sleeping in her car seat. She has gotten a lot of much needed rest. So far so good.
We brought 3 girls with us and left 3 at home with Grandmom . We all could not fit into the car with all of Alex's stuff.

Another adventure we had on this trip was the addition of a new member of the family. For the past month we have been puppy sitting Paul's Boston terrier -Dewey.
Grandpop fell in love with him and wanted us to get him one from the same breeder in Atlanta. So after dropping Paul off at school in Atlanta we headed into the sticks of Georgia . This was another crazy adventure. We drove through the woods ,over many dirt roads and into a very remote area of Georgia . We got lost but eventually made it . They turned out to be the nicest country folk. Here we learned " Their Story " . Life lately seems to be having us learn about others and hearing their story . Everyone has a story . Along this journey it has been so enlightening to hear others tell of their lives. The girls favorite part of Their Story (i am not sure why they felt the need to tell us so much , but it was very interesting ) was the part of their pet deer. The deer would walk in the front door , sit on the couch and even sleep by the fire place. We really enjoyed visiting with them and I now feel like a part of their family . It finally was time to pick out Grandpops new puppy and head on our way to Alabama.

The girls named her ...Anna Bell Georgia !She is 6 weeks old and absolutely adorable . Mary , Emilia and Gemma can not wait to meet her .( I have to keep reminding the girls that Grandpop paid for Anna Bell and it will be his dog ).

Praying we get home soon and safely .

Wednesday, January 5, 2011

Not Bouncing Back

We had such a wonderful Holiday with Teresa. It was my goal to have her celebrate her Birthday and Christmas at home and feeling well , and she did. She had a fantastic day filled with so much excitement. Then the day after Christmas she started with a fever. The fever (103.5) lasted for 4 days . We had many trips back and forth to the Doctors and luckily avoided a hospitalization . This virus like all the others has taken it's toll on her little body . She is still VERY tired , requiring 2 naps every day and she is asking to go to bed every night at 7.

The Doctor warned us that she would have a slow deterioration of her health .
I am really praying it is just this one virus hanging on and will leave her little body unharmed and back to her base line very soon .

We are scheduled to return to CHOP on January 14th.to see if she has had any improvement in her heart and lung function from the medicine. Please pray for some improvement ,any improvement would be so great!

It never seems like we have a dull moment. Last week Emillia decided she was going to run through the house with out using her walker and ... you guessed it , she fell and cracked the top of her cast. After many hours spent at the Hospital, she was re casted . Luckily nothing was broken . She is so anxious to be able to wear her new shoes she got for Christmas.

Gemma had her blood transfusion today and did very well. Unfortunately her Ferritin levels are still dangerously high . She is scheduled to have a Ferrascan (High tech. MRI) done on January 18th. This will tell us how damaged her liver and heart are . Last year it showed her liver was becoming very damaged from the excess iron build up . We are hoping this scan will show some improvement.
She is still doing ok from her daily infusion except for the fact that she cries so hard before each one. We are going to start using a numbing cream to try and alleviate some of her anxiety from the pain .

Lucy is scheduled for surgery on January 21. She was born with a solitary kidney and has had a large reflux from her bladder into her kidney for several years. In an attempt to save her kidney from further damage she will have surgery to correct the reflux. We are praying all goes very smoothly with out any complications.

So there you have it . Never a dull moment at The Bartlinski House. Oh I forgot to mention ,we are moving Alex to The University of Alabama this month also .
I am tired just thinking of what we have to do this month .

Praying for spring to come soon .

Sunday, January 2, 2011

2010


What a year. It was one of the hardest years for our family spiritually , emotionally and financially . Our faith was tested in so many ways. The year started us on a journey that at times I was not sure we could complete. When we took the leap of faith to adopt Teresa , I never new how deeply our lives would change. God has opened our hearts to so many things through Teresa . Things that you can only experience through a child that was once an orphan and who's health is so very fragile. Many things I can not put into words because they are so deeply personal between Teresa and myself , they are only felt within our souls.

When we adopted Teresa I had no idea that this was going to be a turning point in our lives that would open our eyes to our purpose here on earth .

Even though it has been the hardest year of our life, I would not change one moment of it.
God has woven us together as a family and through Teresa He has taught us how to love deeper.

Our journey through 2010 was difficult but priceless.
I pray God will continue to share Teresa with us for many more years, we still have so much to learn .

Sunday, December 26, 2010

Christmas Through Teresa's Eyes






Experiencing Christmas through a child's eyes is always exciting but experiencing Jesus, Santa, Presents and Christmas morning for the first time through Teresa's eyes was magical. Having Teresa with us for Christmas this year was the best Christmas present ever . Five months ago we were not sure if she would be here. We are so grateful that God has given her to us and shared her with us for this long .
The look of pure joy on her face was priceless. With every gift she opened she would put her hand across her heart and say "AHHH , is this for me, thank you !"
Please continue to pray for a miracle , for her heart and lungs to be healed .
Thank You everyone !
I hope your Christmas was just as magical as ours !!!

Thursday, December 23, 2010

Christmas Cover Story

Last week Kathleen Cairns from Fox 45 News asked us if she could do a Christmas cover story on our family. It is our hope that someone out there might hear our story and open their heart to adoption ...

Take a look on the right side to view it .
Thank You Kathleen !