We finally arrived home on Thursday !!! What an unbelievable week . Thank you to everyone for your offers of help .
Today we headed up to Philadelphia for Teresa's exam at CHOP . We were really praying for some good news and guess what... we got some , well at least a little and that's better than none.
After all of the testing we met with Dr. Rychik and Katie RN( she is head of the single ventricle survivor ship program ) and it seems that the sildenafil is helping to stop some of the deterioration of her lungs. It is not improving the damage already done but the good news is it is helping a little to stop more damage from occurring and that is great news . Her medicine will now be increased to almost double the strength and rechecked in a few months . We are praying that her pulmonary pressure will continue to drop.If her pulmonary pressure does not drop she will never be able to have surgery on her heart . Her heart is so damaged that Dr. R does not know if she will survive another year because her pulmonary reserve is already so low .
The other good news is she has gained almost 7 pounds and is now 36 inches tall!
Her oxygen was 78 today and her color was good .
The other suggestion was for her to start her Make A Wish . With her feeling good right now she would really be able to enjoy it . This is such a sad process to think about but something I don't want her to miss because she will really enjoy it. I already know what she will wish for , to be a princess. A few weeks ago I called her to come and eat and she turned around , put her hand on her hip and said " I am not Teresa , I am not Fang Fang, I AM PRINCESS " I guess the princess has spoken.
We are very grateful for this little bit of good news . Please continue to pray for her pulmonary pressure to decrease and for her to stay free of any viruses or other illness.