"Believe In Miracles", is a non- profit organization collecting donations for Teresa's medical expenses. Contributions can be made payable to Believe In Miracles , P.O. Box 21199 , Catonsville MD. 21228. All donations are tax deductible.
Fundraising , non -profits and donations for Teresa' medical expenses are something that have been a very humbling experience . When we started this journey we thought we would be able to do it all ourselves but God quickly showed us that it would take much more than Ed or I could ever handle on our own . If you feel you are able to make a donation in any way we are eternally grateful and humbled by your generosity . But please know that what we need more than financial help with Teresa's medical expenses are prayers. Prayers will always mean more than money . We have been truly moved and humbled by the love and generosity of so many in our wonderful community . All support is welcome as Teresa's journey to a new heart continues and our "Happily Ever After " awaits us .
We had some very happy Trick or Treaters at our house last week .
Dress up is a daily occurrence for Teresa so picking a costume for
Halloween was simple ... a Princess. Her decision changed many times .
She started out on Halloween as a Southern Belle but decided the skirt
was too fluffy so she changed into Belle and then settled on Rapunzel
with her blonde hair.
Our visit to CHOP last week was filled with more bad news . Teresa
is still retaining a lot of fluid and her liver increased 3cm in one
week . She is starting 2 more heart meds. that will hopefully help but
the Doctor said she needs a new heart and soon . The transplant team
also wanted us to be aware that it may become necessary very soon for
Teresa to become an inpatient as she waits for her new heart . I am
not sure how we are going to swing this , but we will cross that bridge when it comes
. God will provide a way ! This is HIS miracle in process and HE will
orchestrate every move.
Emilia is counting
down the days to have her Fixator removed in 2 weeks. She is so excited
. She will have the fixator removed and The Doctor will insert two
rods for stability . A few more months in just a cast and then she will
have a brand new arm !
Gemma will have her blood
transfusion this week . It will be very interesting to see what her
hemoglobin level is this month because she has really been dragging this
past week . She is going 4 weeks between transfusions this month
instead of every 3 weeks . When I looked at the picture of her and
Teresa in the tub together , her little lips were so white compared to
Teresa's purple lips .
Lucy is going in to have an MRI
of her spine and brain next week . She has been having a lot of
headaches and pain in her back lately . Because of her hemi vertebrae,
butterfly vertebrae, cervical fusion , scoloiosis and abnormal anatamy ,
headaches and back pain are all something she has become accustomed to
living with . But lately they have really started to bother her. (She
is someone that NEVER complains.) So she will be having a few test done to make sure all is well in her little body .
November is proving to be a very busy month already . Praying for the strength to get through it and the peace to be able to enjoy Christmas together as a family .