So we continue to wait.
We are now visiting CHOP every week for check ups. Todays visit did not help to alleviate any of my fears . Teresa's heart continues to deteriorate . She also has a very minor cold ( actually just a slight stuffy nose and minor occasional cough ) but it is affecting her O2 levels and causing her to retain too much fluid .
On days like this it is hard to wait . Her little body is getting very tired . As she lays here sleeping next to me I am filled with so many emotions , mostly fear . How do you prepare for a surgery that could take her life BUT at the same time is the only chance to give her life ?