We are waiting ... We arrived home this afternoon after a very long three days.
Thursday morning Teresa and I drove to Philly for pre op testing . After a long day we checked into the Gift Of Life House . We were hoping to stay at The Ronald Mc Donald House but they were completely full. The Gift of Life House is specifically for transplant families ( adult and child transplant ). The House is amazing with all the amenities of home . Every night volunteers come and prepare a home cooked meal for families staying in the House . It was delicious and provided one less thing to worry about . We met some very courageous people while there . All of whom are waiting for a transplant .
Friday Teresa had an MRI and heart Cath.. She was so brave , not even crying when her IV was started . She actually helped the nurses to do it . They were very impressed with her calm state .
After the cath . we spoke with Dr. Hanna about the results. I was praying that the results would be very clear and provide a very decisive prognosis . Dr. Hanna was very optimistic and felt she should be listed for a heart and that she would have a good chance of surviving . Her pulmonary pressure was still over 30 and her PVR( pulmonary vascular resistance ) was 3 . Both these numbers are not optimal for heart transplant but Dr. H feels its all about the flow . At this point it was becoming very difficult to follow the tremendous amount of information and details so I had to rely on his level of expertise and trust his decision . He feels she would survive a heart transplant . She will struggle the first few days as the new heart battles the extremely high pressure in her lungs . The fear is the right ventricle will start to fail because of these high pressures but he thinks with medicine she should be able to over come this and after a few days stabilize .
Now we must wait as the transplant team reviews all of the data and makes their decision .
We should know their decision by the end of next week . Once again we find ourselves waiting and praying for a miracle !