Sunday, February 5, 2012
It seems like waiting is something we do a lot of these day . Waiting for surgeries, Doctors appointments , physical healing ... This past week has us waiting for biopsy results.
A few weeks ago , Lucy started with severe abdominal pain and vomiting again . It was exactly the same as in November that ended her up in the hospital . This time she was seen by a GI Doctor . Last week she had a colonoscopy and Endoscopy . She had 2 areas of "Concern". The Doctor unfortunately would not reveal any further information and was adamant on waiting for the biopsy results to come back before he would discuss it further. So we are waiting and praying . Patience is definitely not one of my attributes . The results should be back in 7- 10 days.
Today Emilia had another visit from Mayzie. Annabelle(AKA "Puppy Lovins") has made great progress. She no longer tries to kill Mayzie. We have been implementing Cesar Milans (AKA The Dog Whisper)techniques. Annabelle no longer is the "Pack Leader", I am . She is a completely different dog . She accepted Mayzie without any incident and quickly became best friends. So happy for this !
Mayzie has been such a blessing for Emilia. She is a much more self confident child. She has learned all the commands and is so proud of "Her Dog".
Teresa, she is still using her oxygen during the day . She seems to be very blue and winded a lot . We return to CHOP on Feb. 17 . I know the Doctors say her lungs are slowly healing but it is very difficult to believe this when she seems so tired , out of breath and blue all the time . One thing is for sure , it has definitely not affected her personality . She is still the "Boss" as she likes to be called . One of our favorite sayings each day ( well about 50 times a day ) is "Who is the Boss Teresa?" Slowly , very quietly she answers, "You are Mommy, but can I be the boss when I am a Mommy ?"
Miss Gemma "Love" is doing great. She was able to hold on to her blood for 4 weeks this time. We hope she is trending in the right direction . Her Ferritin levels are still extremely high . We have been trying for 2 years to lower her levels with no avail. She will have another Ferriscan this month to see if her heart and liver have any further damage.( she has this test done once a year along with a liver biopsy).
Thank you for all the prayers for "Our Girls", they definitely are a huge "Blessing " in our lives.
If you could also keep in your prayers Min Min . ( Teresa's friend from The China Care/Half the Sky Home ). She is having surgery on her Heart this week .
P.S. The song is for Teresa. She LOVED the half time show of Madonna . She loves anything that sparkles and she loves to dance. She was quick to point out to me that Madonna was not wearing a skirt but a dress . We watched it 9 times .
Posted by Our Family at 2/05/2012 05:13:00 PM