We had been postponing Lucy's cleft palate surgery for a few months but after meeting with her orthodontists a few weeks ago he suggested that we not wait too much longer .
Lucy was very nervous about the surgery ( alveoloplasty and rhino plasty ) . Mary had the same surgery for her cleft palate last year so Lucy kinda new what to expect. Mary breezed right through her surgery but Lucy ended up having a few minor complications . She had a very bad reaction to the anesthesia and that made her recovery a little slower along with some bleeding issues.
The third day post op she finally turned the corner and started feeling better. The hospital was having their annual Turtle Derby Fundraiser and Lucy was feeling well enough to venture down to the court yard to watch .
Her little face was so swollen she couldn't talk or smile .
The Clowns also stopped by and brought lots of happiness !
Right now the most painful part is the bone graft taken from her hip . We are praying the graft takes and will not have to be repeated in a few months.
This weekend we had a wonderful visit from Paul and Meghan . They came home for the weekend for Megs friends wedding .
The girls always love when they come home . Just a few more months and Paul will graduate and be a Doctor of Chiropractic ! We are so proud of him following in his Father and Grandfathers footsteps .
Little Miss T had a pretty good week. We will head back up to Philly next week for another check up .
Gemma Rose will start her new chelation medicine this week along with her daily chelation infusion to hopefully lower her Ferritin levels . We are praying she does not have the same bad reaction that she had two years ago when she tried this med.
She still goes to Hopkins every three weeks for her blood transfusions . We are hoping this summer we can stretch it to every 4 weeks but if not we will make it work out .
What a blessing to have everyone home and doing so well !
Oh, poor Lucy - it hurts just to see how swollen she is, I can't imagine how she's feeling! Still, it's all for the good, and it's good to hear she's moved on into the healing process. I'm keeping the whole family in my thoughts, and there's a prayer circle at the nursing home in which you are all "regulars". Hang in there!
ReplyDeleteMorning Ann - prayers that the recovery goes well - love seeing the family together!
ReplyDeletehugs - aus and co.
Hi! I read a lot and always praying for theresa and your family. I have 2 kids with thal major and was wondering if you are part of our yahoo group or fb group? The fb group is for parents who have a child with thal, so people are a bit more open. I would love to converse with you about Gemma via fb. One of my girls just had a major setback from ExJade and I've filed it with the FDA. I'm hoping Ferrokin gets approved soon b/c it doesn't seem to have as many issues/side effects. Feel free to email me @ longforababy @ yahoo.
ReplyDeleteGlad to see that Lucy is doing well - sorry she had a rough go of it! Continuing to pray for your beautiful family - Theresa from Georgia
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