Because of her health she will attend only half a day and she will have home school 2-3 times a week in the afternoon . Hopefully in a few months she will gradually go full day if she can tolerate it .
She was so excited ! Teresa and Gemma were split into different classes . I really debated having them together but the school felt it would be in Gemma's best ineterest to be seperated. Teresa has a tendency to talk for Gemma and with her severe speech disorder she needs to be more vocal for herself . The girls are virtual twins and Teresa pretty much thinks "SHE" is the boss of Gemma . Gemma is so laid back and easy going she lets Teresa "Think" she is the boss but when she wants to be heard , look out , the drama begins .
Mary was so excited for school to start that on Sunday at 3:00 in the afternoon she took her shower , laid out her uniform , packed and re packed her book bag and then asked to go to bed . She woke up early Monday morning with a smile and ready to go . I wish I could say the day started so pleasent for a few others but ( not mentioning any names ) , they were cranky , tired , and not used to the early rising .
Monday was also Lucy's Birthday . Not a fun Birthday having school start on it but Lucy was so happy to be turning 9, I don't think she minded . She thinks the older she gets , the bigger she will be. Unfortunately because of the many syndromes she has , she will always be tiny and that's fine with me because she is easier to hug and squeeze .
We had a wonderful summer and actually were able to go on a vacation that I am very grateful for . We visited family and friends we had not seen for quite some time. We tried to enjoy every minute of every day and squeeze every last minute of fun into summer as we could . When you have a child that you are not guaranteed any tomorrows with , you look at EVERY day differently . I want to fill every day with fun, love , happiness and new experiences because we just don't know if we will have another summer. Teresa's heart function has started to deteriorate more. Dr. Hanna was hopeful that within a few weeks she should be able to stabilize . He said it was most likely was from the summer heat .
Never in my life could I have imagined how Organ Donation , Blood Donation and Orphan care would play such a huge part in my life . Organ donation was always someone elses responsibility . I loved reading the story's of people who received a second chance and were so sick and now were doing great . I always thought " that's nice but I am so glad I don't have to worry about that ". Now my child will die with out someone else making that organ donation . Blood donation was the same . I donated blood in the past but it was never a big concern . I wanted to help but did not feel the tremendous responsibility that I now do . Without blood transfusions every 3 weeks my child will die .
Orphan care was always someone else responsibility too . We would donate money and say "well someday if we have the money we will adopt and do more ..." We never had the money , the time was never right , life was not standing still and children needed homes . So we adopted .
We now advocate for Organ Donation , Blood Donation and Orphan Care in china . It's funny how your life goes in a completely different direction than you ever imagined when you say "Yes " to Gods Will . All the incredible experiences we would have missed out on had we never said "yes'.
Right now our life is very stressful and full of many unknowns but knowing this is Gods Will we are chosing to embrace it and go on one incredible journey down so many roads we never imagined we would travel .
We are looking forwrd to Fall and creating many more wonderful family experiences .
Teresa is already asking when we can go pick a pumpkin.
I have to get through the mounds and mounds of paperwork and books to cover from school first !
