Team Teresa !

We had a VERY busy week , 3 Hospitals,  4 Doctors appointments and 3 orthodontic appt.  . Oh and a two day lacrosse tournament in Delaware !  

Everyone is doing well .  Emilia's arm is now 4cm longer .  We will stop turning the fixator in Aug.  .  She will hopefully have it removed in November after the bone fills in .

Gemma  did very well with her blood transfusion .  She seems to be holding her own for 3 weeks before needing to be transfused again .  We tried pushing it to 4 weeks again but her hemoglobin dropped too low with the additional week .

Teresa's appointment at CHOP also went well .  All of the girls are going to come with us for her next appointment in Aug. so we can meet with the Child Life team . The girls will tour the hospital and see where Teresa will be recuperating and then they will discuss the process of transplant .  Child Life will answer any questions the girls may have .  Even though we have already talked to them about Teresa's new heart,  I think it will really help   to have it explained by the team .

This tuesday night we will be meeting with some wonderful  friends from our church and community . A  very caring member of our church  (MaryAnn), has organized  "Teresa's Team ". If you would like to be a part of "Teresa's Team "  or come to the meeting ,  send me an email and I will pass it along !  
Mary Ann has been a HUGE blessing to us !
Here is her email with all of the information .

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Hello my Co-Travelers on our way to Heaven. We have just been Blessed with the opportunity to volunteer to be members of "Teresa's Team of Helpers"

I'm MaryAnn Manning and I'm establishing a Steering Committee to brain-storm ideas to assist the work of God in "Thy will be done on Earth as it is in Heaven" with Teresa "Fang Fang" Bartlinski.

Please join us on July 24th at 07:00 PM in the meeting room downstairs in the Catonsville Library.

The total agenda of this meeting will be brain storming ideas of ways we can assist this family for the next 6 months and beyond according to God's plan.

Please reply to this e-mail as soon as possible. I'm currently in search of a small group of friends to design a plan of action to complete this Blessed opportunity.

Thank-You in advance, you are now Blessed as a member of "Teresa's Team of Helpers".

We want to thank you for your Prayers, Love and Support in Believing in Miracles with the love of God! 

 

MaryAnn Manning

 

 

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Without the help of our church,  community and friends  we would not be able to make this journey to Teresa's new heart . This journey is VERY heavy  and much more than we could ever carry ourselves .  God continues to bless us with angels along the way to help us .  Saying  "Thank You " just doesn't seem like enough . I  love the way MaryAnn put it ... We are ALL Co-Travelers on our way to heaven .    How amazing is that !

Living on The Edge

Our family is yet again adjusting to another "New Normal".  Living on the edge...  waiting , wondering, hoping, praying and  ready to RUN to Philadelphia .

Our life is filled with a LOT of stress right now as we prepare for Teresa's heart transplant BUT it is also filled with hope and for this we are eternally grateful  !

The girls enjoyed Vacation Bible School at our church this week . We also have been spending a lot of time just hanging out at our community pool , soaking up every minute of summer time .  Since our future is about to change drastically , we are trying to enjoy every second of each day together .  Playing dress up is Teresa and Gemma's favorite thing to do .  They must change at least 10 times  each day into different princess outfits.

We met with a member of our church today who  is organizing help for us ( caring for the girls and meals), while Teresa is in the hospital .  It is very humbling having to ask for so much help .  If we had the funds we would simply hire a full time nanny , but that not being the case , we have learned yet another lesson in humility .   If you are local and would like to be added to "Teresa's Team of Helpers",    please just send me an email and I will pass your name along to the team .

As part of a fundraising effort to cover medical expenses, travel back and forth to Philly and lodging while in Philly we are giving out inspiration bands for a donation of $2 .00 each .  They are red and say -BELIEVE IN MIRACLES   -  TERESA -
If you are interested please email me .

Wednesday we will venture back to Philadelphia for what will now become a monthly trip  .  Once  a month Teresa will be thoroughly evaluated to make sure she is not slipping further into heart failure . If this happens then her status on the transplant  list will be changed to a 1A (top of the list ).   For now she is enjoying summer time , princess tea party's , dress up , swimming, catching lightening bugs, snow balls, and being a princess.  Life doesn't get much better than that !

Thank you to EVERYONE for your continued prayers, love and support.  There is no way we could do this alone .