Waiting

We are waiting ...  We arrived home this afternoon  after a very long three days.

Thursday morning Teresa and I drove to Philly for pre op testing .  After a long day we checked into the Gift Of Life House .  We were hoping to stay  at The Ronald Mc Donald House but they were completely full.  The Gift of Life House is specifically for transplant families ( adult and child transplant ).  The House is amazing with all the amenities of home .  Every night volunteers come and prepare  a home cooked meal for families staying in the House .  It was delicious and provided one less thing to worry about . We met some very courageous people while there .  All of whom are waiting for a transplant .
Friday Teresa had an MRI and heart Cath..  She was so brave , not even crying when her IV was started .  She actually helped the nurses to do it . They were very impressed with her calm state .

After the cath .  we spoke with Dr. Hanna about the results.  I was praying that the results would be very clear and provide a very decisive prognosis .  Dr. Hanna was very optimistic and felt she should be listed for a heart and that she would have a good chance of surviving .  Her pulmonary pressure was still over 30 and her PVR( pulmonary vascular resistance ) was 3 .  Both these numbers are not optimal for heart transplant but Dr. H feels its all about the flow .  At this point it was becoming very difficult to follow the tremendous amount of information and details so I had to rely on his level of expertise and trust his decision .   He feels she would survive a heart transplant .  She will struggle the first few days as the new heart battles the extremely high pressure in her lungs .  The fear is the right ventricle will start to fail because of these high pressures but he thinks with medicine she should be able to over come this and after a few days stabilize .
Now we must wait as the transplant team reviews all of the data and makes their decision . 
We should know their decision by the end of next week .  Once again we find ourselves waiting and praying for a miracle !

I have to tell you how grateful we are for all the heart felt comments and prayers for Teresa . She is an amazing little girl with an iron will for life .  We feel very blessed to be able to share her story with everyone .  Your prayers are all part of her miracle for  life !