Unfortunately, following the heart catheterization the doctors determined that the donor heart has been rejected. Teresa will be relisted at the top of the list for a new heart. She will remain on life support until Monday, when she will go through another surgery to put in a Berlin heart. This will be her 4th major procedure in 2 weeks, so the first major hurdle will be for her to fight to survive this operation.
The Berlin heart will give her 6 to 8 months to wait for another heart. During this time she will be able to come out of sedation, but will have to remain in CHOP with the Berlin heart and other machines attached to her at all times. The doctors at CHOP have never seen another child with these same circumstances, and have only implanted this device for one other child.
Please continue to pray for Teresa!! We need to pray that all other organs will remain stable and that she survives Monday's procedure!!
- Laura
Praying for everyone! God is fairhful!
ReplyDeleteI will be praying for Teresa too I am a good friend to her when we did a good thing through aktion club of Marley and I know her family is going through this time too get well Teresa love you sweetie
DeleteSo, so sorry to hear this news. We will continue to pray for Teresa! I found this site a while ago and it looks like this little went through a similar situation - heart transplant, rejection, berlin heart, transplant. She seems to be doing very well. Here's her blog http://4mykaidence.blogspot.com/
ReplyDeleteI have been following your lovely little girl's progress. I heart goes out to you and your family. She is in my thoughts and I hope she does well on Monday.
ReplyDeleteWe'll be praying. God bless you.
ReplyDeleteThe Foro Family
Our daughter received 2 heart transplants and I have been totally connected to your story. It has brought back so many memories of what we all went through together. Teresa has captured my heart. She has the will of many and an army of supporters storming the gates with prayer. I check your blog numerous times throughout the day - bless you for keeping us all updated. I will continue to pray for Teresa, your family and the surgeons and hospital staff. I know this child has already performed miracles in the way she has touched and changed so many lives but her work here has just begun. Sending you much love!
ReplyDeleteWe will continue to pray for Teresa and your family.
ReplyDeleteDear God in Heaven, please hold sweet little Teresa in your loving and gentle arms. Please relieve her of her pain, and bring a smile to her face. Give her a chance to hug her dollies, and please, help her to survive her next surgery and receive another heart very soon so that she can return to the family that loves her so. Dear God, please hold Ed and Ann in your loving arms as well. They are weary with worry. They need your extra love and strength. See that they get enough rest and food, and make sure they hold each other for comfort. Please watch over their wonderful family and give them all extra love and care as well.
ReplyDeleteIn Jesus name, Amen
We will not lose HOPE! God is able and he is faithful....but I know how long the journey feels. So thankful that you know the love of Jesus and that he carries you. Holding you close in prayer. (((HUGS))) from RI.
ReplyDeletePraying for your daughter. We have a 31 yr. Old son waiting for a heart transplant. We are holding you all in prayer.
ReplyDeleteAnn....
ReplyDelete"Unfortunately, following the heart catheterization the doctors determined that the donor heart has been rejected.". Oh no!! I am so sorry. Praying now for a new heart. That it bond and flow successfully with Teresa's little body. But I have leapt ahead here. Praying--hard!!--for Teresa's Berlin heart surgery. That there be absolutely zero complications. She is a fighter, your girl. May God continuously watch over her. Six to eight months of waiting for a new heart?! I cannot even imagine. Praying for it to be sooner. Ironically, I can feel my own heart pounding....
--Raelyn
We are praying for Teresa and will keep praying!
ReplyDeleteSo very sorry to hear things have taken this turn. Teresa seems like such a fighter, stay strong precious girl. My thoughts & prayers are with you all.
ReplyDeleteI am so sad to hear this news and am praying for Teresa and your entire family. There was recently a news story about a little girl who lived with a Berlin heart for several months, close to a year as I recall. Then she received a heart transplant and is doing fine. Never lose hope--- so many of us are praying for Teresa.
ReplyDeletePrayers for you all at this very sad time .... Please continue to believe that GOD is with you through it all. ....
ReplyDeleteBE NOT AFRAID was the homily on Sunday and the song runs through my mind as I read your updates. Much love and big warm hugs for each of you! may your little princess have a peaceful night so you may all rest and gain the strength you need. Many prayers!
So very sorry to hear this. I will continue to post your blogs on Facebook and continue to spread the word for prayers everywhere. Love and prayers to you and Ed.
ReplyDeleteI was so hoping that the heart would recover and be accepted by Teresa. My prayers are with you.
ReplyDeleteAs Reena said, there was a program about a family who have 3 or more children with heart disease. The second daughter waited almost a year for a heart and they had her on a heart pump in the hospital - done in California - before she received a new heart. From following your posts, it sounds like you have a real "spicy girl" there and we are all pulling for her!! God bless!!
ReplyDeleteOur family is hoping for the best and are thinking of you.
ReplyDeleteTeresa has been in the thoughts and prayers of my family! We pray for strenght, healing and the perfect donor for this sweet little girl!!!
ReplyDeleteWow - words do not express how any of us feel right now. At least the Berlin heart gives you some hope and more time. Having to stay in Philly is a challenge for your family, I'm sure. I know your lives must feel completely upside down right now. We will be praying for you. We can never understand what we face in life, but we will pray that God will give you the physical, emotional, and spiritual strength to face each day.
ReplyDeleteSending prayers from Virginia for your Warrior Princess and your family.
ReplyDeleteDear Ann, Laura, and family,
ReplyDeleteI am so sad to read this update, but I still believe in miracles. There is always hope for those who believe. Myself, my family, and friends will continue our prayers for her complete healing. We will not give up praying and having hope.
God bless all of you,
Lee Ann
Praying for Teresa here in TN.
ReplyDeleteI am so sorry to hear about the rejection of the heart. I have been following Teresa's story for a couple of days. Praying for survival and healing for this brave little fighter.
ReplyDeletePraying on the Florida coast for Teresa...mom and dad and the entire family and all those closest to you all. God bless.....♥
ReplyDeletePrayers for you and your family
ReplyDeleteI am so very sorry to hear this news. I will continue to pray for her. God will guide the surgeon's hand just as He has all along. My prayers are with you. She is a fighter.
ReplyDeleteI continue to pray and stand in faith that our God will do miracles in this precious little girl's life.
ReplyDeletePraying for you all. I'm a Nance cousin.
ReplyDeletePraying for your family and Teresa from Michigan. Your story continues to touch me daily and I am praying so hard that the surgery goes well.
ReplyDeleteI hope you can feel Gods arms around you in this time. You are an inspiration to our family.
Praying, praying, praying in Memphis for Teresa and your entire family.
ReplyDeleteWe continue to pray for a miracle for Teresa and strength for you all who love and care for her so greatly. Dear God, please sustain Ann and Ed during this difficult time. Give them peace, strength, and comfort I pray. Comfort the other children oh God. Hold each of them in the palm of your hand!
ReplyDeletePraying in SC!!!
Wow. What news. Yikes. My brother died tragically of stroke in 2003, and he became a hero donor of both kidneys and his liver. I ask his intercession too as Teresa continues her sojourn here. Hugs and prayers from a stranger in Rhode Island.
ReplyDeleteUgh, poor miss T. Kepping her in our prayers.
ReplyDeleteGod have mercy! HE is still on the throne and his mercies are new EVERY DAY. May he bring healing! So be it!
ReplyDeleteWOW!!! She is such a fighter. We are thankful God has seen her through such difficult circumstances already and trust in His plan for her. May God be with you all.
ReplyDeleteI'm sitting here with literal tears of frustration in my eyes. Holding you all in my heart & thoughts... Refuah Shlemah...!
ReplyDeletePraying with everything in me.
ReplyDeleteUgh, this is so not the news that any of us, especially you, her parents, family, and friends, were hoping for.
ReplyDeleteI look at that picture of her, her little body trying with all its might, to pull through.
Hoping for a turnaround for her with the Berlin heart and that a suitable donor is found in short order.
Keep fighting Teresa!!!
ReplyDeleteLike so many others we have been and continue to send our prayers. We have faith!
ReplyDeleteLike so many others we have been and will continue to send up our prayers. We have faith.
ReplyDeleteStill praying hard in so cal and passing on the info to anyone who will pray - would a second opinion be in order - I thought there were ways to deal with rejection - I tell my daughters to pray as well as my wife
ReplyDeleteI want her to get to disneyworld soooo bad it hurts - praying hard
ReplyDeleteDo you know Danny and Mary Wusterbarth? Their daughter Brea, adopted from China, had a berlin heart, then a transplant I believe. I don't know them, (or you) just remember their blog, still available but no longer active. But if interested you could find them on facebook.
ReplyDeleteHoping for the best for you and your family. You may not want to post this, just thought it might be a good connection for you.
From another adoptive mom.
I remember them and that blog...tried to find it so I could let Teresa's family know..glad to see someone else remember that blog.
DeleteSuch hard news to take. Sending positive vibes your way. I remember Half the Sky advocating for your Teresa. I want to pray for a new heart for her but it also means someone else must die. So hard, love your girl and I so wish the heart she does have would start working. Sending prayers your way. Hoping a new heart will come soon.
ReplyDeleteSo sorry to hear this. Will continue to pray for little Teresa. Good thoughts from Kansas to your family as well.
ReplyDeleteHang in there! Know that Jesus is holding your baby girl in his arms every step of the way. Prayers for your family in Montgomery, Texas!!
ReplyDeleteOh guys - can't.stop.the.tears...may our Father bring you the Healing that is do to this brave soul and her family....
ReplyDeleteholding you guys in our hearts and prayers - hugs -
aus and co.
Praying hard here in Wisconsin. Teresa is a fighter and this is another fight she will fight and concur with the love of God and the support of so many family and friends. God bless you!
ReplyDeletePraying in Colorado for Teresa and the whole family. God bless, Mrs. Schneider
ReplyDeletePraying for you all in TN! Melanie, Dexter, Lucy and Nina
ReplyDelete2 Lord, be gracious to us; we long for you. Be our strength every morning, our salvation in time of distress. Isaiah33:2
ReplyDeletePraying for you in NC
I am so sorry to hear this news. Continuing to pray for Teresa and your whole family - and especially for a successful surgery on Monday with no complications. Theresa from Georgia
ReplyDeleteIf this medical team is inexperienced in this circumstance, is it possible then to have another, more experienced, team implant the Berlin EXCOR heart instead?!?
ReplyDeleteExperience is critical in this type of surgery. Perhaps a team from Hopkins??
praying God heals your precious little one's body
ReplyDeletemorning noon and night...praying praying praying. Lifting Teresa to the Lord....begging actually, that HE heal her.
ReplyDeleteUpholding your family and little Teresa in prayers..Praying in Durham, North Carolina.
ReplyDeleteI am sorry to hear that this heart was rejected Laura. We all still love the Lord, we love Teresa and your Family w/ the love God has given us. If I may share a poem I wrote long ago called "Beauty."
ReplyDeleteLovely as a flower in full bloom,
Your beauty radiates from a swollen womb,
Your gentle sweet touch warms my soul,
You give me strength and courage to be bold,
To you I give mind, body and soul,
Your everlasting beauty has made me whole,
You are more to me than the air I breathe,
It is you that gives it, freely to me,
The beauty I speak of is not of your skin,
It's the rare beauty that comes from within,
It covers over all faults and pains,
It's the only beauty that forever remains,
It's the beauty that brings together marriages and friends,
It's the kind of beauty that never offends,
What then, is this beauty I speak of,
It's a rare beauty, the beauty of Love.
And that is the *beauty* that God has shown us and we show you, Teresa and your Family. We are still praying, the Lord has blessed you.
John M
Sorry to hear that news. We will continue to pray for Teresa, her family, and the Team at CHOP. We trust in HIM! - The Stanghellini family.
ReplyDeletePraying here...God is faithful! We are also an adoptive family with children from China. We live outside Philadelphia and would love to help you in any way possible during your long term stay. It sounds like a local team may be helpful, so when you have a chance, please contact me at: deb.padden@gmail.com.
ReplyDeleteTeresa, you, and your family have been in my prayers and thoughts for a long time, but especially during this difficult time for Teresa. Praying that all will go well on Monday and that Teresa will get a new heart very soon. May God's loving arms wrap around you and give you the strength you need. May you feel God's presence every moment of every day.
ReplyDeleteContinuing to pray for sweet Teresa, and the rest of the family. Praying for strength for all of you!! And wisdom for her doctors.
ReplyDeletePraying for your girl and so upset to hear the news yesterday..just no words! Just keep on believing and standing on faith...God is still in control no matter what the odds are... I passed away during an allergic reaction during gallbladder surgery at the age if 14 and was infected and with a fever that should have left me majorly damaged. But I survived against it all, so can your girl! Don't give up and tell your baby to not give up either, she is wanted here on earth!!!!
ReplyDeletePraying for your princess! Praying for all of you,
ReplyDeleteContinue to pray for your family. We believe!!!!
ReplyDeleteWill continue praying for Teresa and her family. Prayers from Catonsville, MD...
ReplyDeleteMany prayers for hope and good health from Baltimore. I am so very sorry to hear the recent news. I have kept Teresa in my prayers and will continue to pray for her.
ReplyDeleteMy friend's daughter was on a berlin heart when she was just a baby (about a year old), and then she had her transplant. She did amazingly and is a normal kid now. :)
ReplyDeleteMay G-d bless and strengthen Teresa and all of you who care for her. May she have a refuah shlemah (complete recovery)!
ReplyDelete(More than 35 years ago one of my sons died of heart disease at Children's Hospital, before the miracles of today were available.)
You must have every faith and belief that Teresa will come through this Valley of the Shadow of Death and go on to lead a happy and productive life.
Many kids have HPLHS . Not many live , I'm 27 and had all operations at CHOP 86-89. This is not the first HPLHS case . My mom had many friends that had babies that died from it .
ReplyDelete