Her ability to fight back from what ever happens to her is amazing. She never gives up.
Last night as I was getting ready to go to my sleep closet ( actually a sleep room down the hall . Ed sleeps on a bench in Teresa's room so one of us can be with her at all times in case she awakes so we can comfort her), the ECMO cannula cracked as Teresa was being repositioned in her bed. Thanks to the very fast reaction of her wonderful nurse , a crowd of Doctors, nurses and ECMO specialist descended upon her room within seconds.
Several Doctors applied pressure to the site, ordered more blood , called surgeons and called back to the hospital an ECMO expert.
Ed and I stood by helpless watching as Teresa was hemorrhaging. Two chaplains were called in to pray with us.
The Doctors were unsure on how to repair the canula , because this had NEVER happened before. It was finally decided upon to change out the entire stop cock( the piece that had cracked). She was taken off ECMO as they repaired the broken piece and we all held our breath . Like Teresa ALWAYS does she bossed her heart and stayed strong.
I can not imagine having to go through this alone with out Ed here. Right now work, house payments and bills don't even matter. Comforting little Miss T is all that matters. Her strength and determination to live is giving us strength. She is a amazing!
The great news this morning is her creatinine levels have stopped rising ( kidney function). This is what we needed for her kidneys to start working again. Praying hard for her kidneys to heal .
The stop cock (the portion that cracked ) will be sent back to the manufacture for investigation to figure out how and why it cracked. It should not have broken just by repositioning her head. This is a photo of Teresa after she was stabilized and cleaned up a little. The white thing sticking up is the stop cock and it cracked at the base.
I have so missed hearing her little voice, so I have been watching her videos . I thought everyone else might enjoy them to .
The Boss has spoken!
So thankful for the wonderful Doctors and Nurses here at CHOP !
Dear God,
ReplyDeleteThank you for helping our girl through this difficult time. Thank you,Lord for hold Teresa and her Momma and Daddy. In Jesus name amen!
Love, hollym. :)
Bless all your hearts. How scary that had to be. She is going to recover I feel it my bones. She has the fighting spirit. Wants to ride that bike without her tank :-)
ReplyDeleteHugs to one momma to another in Kentucky
Kristie O.
Ann, I read your post when I awoke this morning and have been praying constantly.
ReplyDeleteTeresa continues to inspire and the Lord continues to amaze us with His power.
Because of the Lord's great love we are not consumed,
For his compassion never fail.
They are new every morning
Great is your faithfulness.
Lamentations 3:22....
We LOVED your video! What a beautiful little girl! Teresa is just so delightful!We continue our prayer vigil!Godd Bless you all!
ReplyDeleteWe are praying in Jacksonville, Fl...the red thread is very special, and we hold Teresa in prayer. We have asked for prayer from our students at St. Patrick's and from anyone else we know.....
ReplyDeleteWe do believe in miracles and all of God's promises...
Much love and many blessings,
g parker, sullivan and sutton
Terrifying to read, can't imagine how you had to be feeling at the time. Continuing to pray for this little princess and her mighty will to live. Also praying for peace and strength for you and your family. Have found myself up in the wee hours of the morning too and use this as time to seek the Lord's healing hand for Teresa. Mark 5:41-42 has been the scripture that keeps coming to mind in these prayers for Teresa. "Talitha Koum!!" is my desire for her as well. Where Jesus said to Jairus's daughter "Little girl, I say to you get up". God continue to keep you all and bring COMPLETE healing for your precious little princess.
ReplyDeletePS - when I pressed PUBLISH, one of the re-captcha words I had to type to prove I am not a robot was "Saviour"! Oh my gracious! Of the THOUSANDS of captcha and re-captcha words I've had to type, that was the first time I've had the word 'Saviour'. I *HAD TO* let you know (even if I have to do the loathsome re-captcha again.) Esther Paris in RI
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ReplyDeleteMy thoughts and prayers to Teresa and your family.
Oh my goodness, thank you so much for that video!! Have been praying for her here in Boston but now I feel I know her a little. How full of life and spirit she is - no wonder she keeps on fighting through! Continuing to pray here for her complete healing, so she can get on with her life and go out on that date. Well, maybe not quite yet for that last bit.... :)
ReplyDeleteSending prayers your way, hang in there. By the way, only an ECMO specialist or a physician is supposed to reposition an ECMO patient if it involves the head/cannula area. Stay strong!
ReplyDeletePull through Teresa.
ReplyDeleteI'm praying.
Scott in Baltimore
Thank you for all the updates about Teresa. I can't imagine what it must have been like to have this happen. Keeping Teresa in my prayers as well as you and Ed and the rest of the family. May God continue to bring healing to your precious angel.
ReplyDeletePrayer Warrior reporting for duty!
ReplyDeleteContinued prayers for your princess. I am sure she loves wearing her tiara even though she can't tell you yet. Miracles happen and she is proving that every day.
ReplyDeleteDianne Duncan
We are praying for you all.
ReplyDeleteYour friends, Linda, Dave, and Skyler Mills
Actually got reprimanded at a family reunion bc I pulled out my phone to check on her. After I told them, respectfully, that I was checking on a recipient they all hushed. They know since moms passing how much I care about my recipient and donor families bc we are all living the same lives, through one another. Yall stay strong!! Hang in T u got this mama! <3 from SC
ReplyDeleteWhat a beautiful reminder for you to hold tight as your princess Teresa recovers from her first surgery and prepares for another one on Monday. Thank you for sharing this wonderful video. Thank goodness for the quick response by the nurse, physicians, and surgeons to help correct and fix the crack in the echmo tubing. I can't imagine how scared you were. Teresa is a strong little fighter. We all are wrapping our arms around her and keeping Teresa in our prayers as the next few days are going to be important steps needed for her heart to heal. Stay strong little princess!! You can go this!
ReplyDeleteThank You God! Could hardly wait to check this blog to see the progress of the world's Sweet Princess Theresa! Will continue to pray and thank you so much for allowing us to share and pray for you!
ReplyDeleteThank you God for protecting the world's Sweet PrincessTheresa! Will continue to pray and thank you for allowing us to support your family in prayer!
ReplyDeleteWow...what a scare!! I am so grateful that it was fixed and she stabilized! BTW. My catchable word is "carried". Teresa sure was carried last night!!!
ReplyDeleteWe are praying for your sweet angel. She is adorable - thank you for sharing her video. Our China girls have such a strong personality. We will pray for her and pray for all of you as your go through this. Praying the doctors and nurses are always guided by God's strength and His amazing wisdom. God will protect your princess. My daughter Alexandria is from China and she is 4.5 years old (oh, yes, we'll be celebrating the 1/2 birthday in six days). She just got out here Tiara to wear in Teresa's honor. God Bless all of you!
ReplyDeleteLove,
Annette and Alexandria (China sister in Phoenix)
How blessed you are! To God be the glory for what He has done. Thank you for sharing the update and the sweet video of Teresa. We are praying here in Kansas. In Christ, Talya
ReplyDeleteOh my gosh. I love the video so much. This is beautiful. I am praying and praying and praying for all of you.
ReplyDeleteSending prayers your way.
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