1A

Teresa's monthly visit to CHOP on Monday was not good .
For  the past few weeks we noticed her breathing was more labored with very little activity .  We attributed it to school starting and being a little tired from the change in routine.  Dr. Hanna thought otherwise  .  Her Oxygen dropped into the 30's for her stress test, blood pressure was extremely high and her heart rate was too high .  He said we really could not blame it on school .  Her heart and lungs are deteriorating more.

The new plan ... she can not come off of her oxygen for even 5 minutes. ( we were not putting it on her while she was riding in the car or laying down watching TV ) But he said this was too dangerous . She also is being moved up on the transplant waiting  list to a 1A status ( she was 1B).   This means she could receive a heart VERY soon . 

Needless to say we are feeling very overwhelmed at this moment .
Emilia has an upcoming surgery in November , Mayzie is still limping and  we are still trying to get plans worked out for the care of the girls while I am  gone .
I have to admit I still hear in the back of my head  all of the Doctors who said this would never happen . That Teresa would never be a candidate for a Heart transplant . All I hear is them repeatedly saying she would not survive it .
So after having a panic attack , I took a deep breath  , calmed down and listened to Ed . He has complete faith that Teresa will be OK.  I on the other hand am still a complete wreck.  

When I step back and look at what God has done in Teresa's life already , I have to admit that her life is a miracle from the moment she survived birth with half a heart , survived 2 years in an orphanage  , survived the flight home and  survived 2 years waiting to be listed for a heart .  She is a miracle already .  God has taken a tiny little orphan girl with enough spunk , personality and determination to move mountains . And look out because she knows when she gets her new heart she will be the BOSS.  ( she loves to be the boss).  We told her that she will be able to BOSS her lungs and new heart to be healthy and strong . ( she is still considered to be extremely high risk for a heart transplant because of the high pressure in her lungs .  The fear is the new heart will not be able to pump against the pressure in her lungs and cause the left ventricle to tank . This is why I am a nervous wreck ). 

WE could really use prayers for peace right now . We also are praying for God to provide the means to care for the girls. But mostly we are praying that Teresa's heart and lungs do not continue to deteriorate .
Thank you all for joining us in these prayers !