Teresa is having an OK week . Since coming home from the hospital she has been VERY tired. She is sleeping 15 hours every night and taking a nap every afternoon. I don't feel the increase in her medicine has had any affect yet. We will go back to CHOP next Friday to see.
This afternoon I heard back from Childrens Hospital of Pittsburgh . They were reviewing Teresa's medical information to see if they could offer a different diagnosis or alternate treatment. Unfortunately they also agreed with Hopkins, CHOP , Boston and Mayo.
We are trying to stay positive but at times it seems impossible. I keep wondering what is Gods plan for her life. So many miracles have happened through Teresa already . So many people have emailed me telling how God has moved their hearts to adopt, how Teresa has touched their lives, how they have returned to God through Teresa, how she has given their lives new meaning , how she has given them faith ... She has touched so many lives. I am so grateful for all of these miracles but I still want Teresas' miracle. I want her heart and lungs to be healed. If this is selfish well than I guess I am being selfish . I know we are not made for this world, but I need more time with her in this world .
(The photos are of Teresa in Mary's First Communion dress. She said she is not taking it off until she can marry Jesus. She has given up ALL of her princess dresses for this ONE ! Even Belle.)
What a beautiful, adorable little girl. We continue to pray for Teresa and that the Lord touch her heart and lungs. She has fans all around the world. We live in Maine and are her bigggest New England fans :o)
ReplyDeleteOh sweet, sweet girl. Ann I can't imagine how frustrating this must be at times, but gracious you can just see the love pouring out of her through those gorgeous brown eyes! Oh my heart!
ReplyDeleteAnn - I wish I could answer the over all question you ask - what is Teresa's role in life....but that one has been added to my list of "stuff" to discuss with the Father when it's my turn on day!
ReplyDeleteBut being selfish? Hardly - Ann - you're just being a mom - continue in a like and similar fashion!
hugs - prayers -
aus and co.
*HUGS*!!!
ReplyDeleteAnna in Sweden
It's not selfish. It's normal. And healthy. And right.
ReplyDeleteI am praying that you get that miracle! Such a sweet and precious baby girl.
ReplyDeleteHi Ann,
ReplyDeleteWe are not giving up here down in Florida :) Miracles happen daily. We had been praying for a friend's son born 3 months ago with a bad heart and his miracle just happened. He now is on the road to recovery.
Teresa is such an inspiration to so many around the world. She has brought so many closer to God. God cherishes her.
We will continue to pray daily and nightly for her healing, and strength for your family.
God Bless,
LA
Thinking of your family
ReplyDeletePraying everyday for sweet Teresa...and for you!
ReplyDeleteHer situation is so close to my heart...I know our Father hears our cries!
Praying!
ReplyDeleteShe is stunningly beautiful and I am praying from Seattle!
ReplyDeleteWhat a beautiful daughter and family. We are praying for you. Hugs.
ReplyDeleteSuzie
I pray for you and for Teresa every day.
ReplyDeleteShe is sweet and lovely. I am sorry this is so hard.
Continuing to pray for Teresa and your family!
ReplyDeleteMy heart is with you. I will keep praying for your precious girl.
ReplyDeleteSweet Ann...I wish I had words to give you peace and strength but I don't..that can only come from the Lord. I am praying for your precious family continually!! HUGS!!
ReplyDeleteIf you are selfish, then I'm selfish too...and I suppose most of the rest of the folks reading this are as well. We all want Teresa to get her miracle.
ReplyDelete