The Bartlinski Bunch

" Teresa "

" Teresa "

Teresa "Fang Fang " Bartlinski

Teresa was born on December 25, 2006 in China. She was born with a very complex heart condition. In July 2010, GOD added Teresa to our family through adoption. We have been blessed with 9 wonderful children. Gods grace has woven us together as a family. Upon bringing Teresa home from China we unfortunately learned she not only needed a heart transplant but also a lung transplant. Her doctors feel she would not survive this operation. Please help us to pray for a miracle for Teresa's heart and lungs to be healed. She is a very special little soul who has touched so many lives around the world ...

Sunday, December 30, 2012


Guess who stopped by tonight ?  
The girls heard a commotion outside and ran to the front door to see what it could be .    Santa was outside of our house on his motorcycle sleigh .  We had met Santa a few weeks ago at The Ronald McDonald house and he  decided to pay us a visit .  What a welcome surprise .  The girls were very excited .  Gemma was already telling him what she wanted for next Christmas.  Apparently Santa forgot her new doll ...(oops).
There is never a dull moment around here  . Sometimes I wish there was but not this week . We had lots and lots of Doctors visits.  I believe everything happens for a reason . When Teresa' cath. , MRI and feeding tube were canceled for Friday because of her cough and also there was not a bed in the CICU to recover in ( she was going to have to recover in the ICU )  I felt it was happening for a reason .  
The reasons : Gemma has bronchitis , Mary has the  flu and Lucy  ended up in the Hopkins ER last night with a very bad asthma attack and Pneumonia .
  Not exactly the reason I was hoping for but Santas visit made everyone feel a whole lot better !
By Gods grace , Teresa has miraculously avoided all of these viruses .

Friday, December 28, 2012

Canceled Again

Unfortunately Teresa's Heart Cath. , MRI and feeding tube scheduled for today had to be canceled .

Yesterday after having the echo., chest x-ray and EKG, her Doctors felt the LITTLE cough that she had could possibly alter the results of the cath. negatively .  They do not want to take any chances ,  so we were sent home to wait .  Everything will be  be re scheduled in 2 weeks and we will try again .

The good news is we will be home for New Years Eve.

Wednesday, December 26, 2012

Merry Christmas and Happy Birthday !

Merry Christmas !  We hope everyone had a very blessed Christmas . 

Thank you all for the Birthday wishes for Teresa.
She celebrated her Birthday  and Christmas  together .  Her two favorite gifts were her pink baby grand piano and a dream lights pillow . 

Thursday we are heading to Philadelphia for pre op testing and then on Friday morning  Teresa will have a heart catherization , MRI and feeding tube placed .

Please pray for positive results from the cath. and a very easy transition to  the feeding tube.  In the past few weeks Teresa has become very self conscious about her little arm and wearing her oxygen .   When other children ask her about her arm she always tells them that's just how Jesus made her .  But she really wants to be the same as all of her friends.

Thursday, December 20, 2012

Program update

"Teresa's Story " will air Monday at 7:40 am on The Today Show .

Tuesday, December 18, 2012

"Teresa's Story "

We want to share with everyone some amazing news that has been happening in Teresa's life.

A few months ago our Immigration Officer asked us to send her an update on Teresa. (  Who by the way is an amazing person.  Cindy was monumental in helping us to bring Teresa home from China very quickly .  I hope one day to be able to thank her in person and give her a big hug. )    Teresa's  update was shared  in The Immigration News Letter.   They then  shared her story  with The Baltimore Sun Newspaper  and this Friday (December 21)   Teresa's story will be on The Today Show .

Teresa will be 6 on Christmas Day  and her life has touched thousands of people all over the world .   Her magical personality and iron will to face all of the challenges in her life have touched many people .   She  has been an inspiration to so many facing medical problems of their own .  She has led many back to their faith by showing how much she loves Jesus and wanted to " Marry " Him on her First Holy Communion Day .  She has also led many families to adopt "Special Needs Children"  , showing them that  there is no fear in adopting a "special Needs"  child , only LOVE .

God has used her life to touch so many already .  We now hope that her life will also  bring more awareness to the  tremendous need for organ donation .

We also hope that Teresa's Story will touch other peoples hearts and they will  help us to pray for a MIRACLE.

"Where there is great love , there are always great miracles."  Mother Teresa

Wednesday, December 12, 2012

The Boss

The Boss is back!

Teresa bounced back with renewed energy and vigor from the trial run .   She is so resilient it amazes me .  Life is back to as normal as possible as we anticipate the arrival of Santa and someone very specials 6th. Birthday on Christmas !   Teresa  is so happy that she shares her Birthday with Jesus .

Teresa is scheduled to have another Heart Catherization , MRI and feeding tube within the next two weeks.  We do not have the exact date yet but we are praying for really good results .( Low pulmonary pressure, low Pulmonary vascular resistance).   We have tried to get by with out the feeding tube but it has been a never ending battle .  She has not gained weight in over a year.

All the girls are doing great also .  Emilia had the external fixator removed and  a  rod inserted for stability . She loves her new Christmas cast . 

Gemma is back to having her blood transfusions every three weeks again ( 4 was too long) .  Her daily infusions have been increased also to 7 days to try and remove her VERY elevated ferritin levels .

We would be so appreciative of prayers for Grace , Mary and Lucy .   The stress of  Teresa's Heart transplant has been very hard on them these past two weeks .   They are old enough to realize the enormity of everything happening  . They have had to make a lot of sacrifices lately .

We hope everyone is enjoying this joyful Christmas time with your family !

All of our children will be home together on Saturday . (Paul and Meg are coming home ). Life doesn't get better than that !

Monday, December 3, 2012


Memorable Days .  The day we were married , the birth of our children and the adoption days of our daughters  are all memorable days filled with joy , love and happiness . I can remember every moment of each one of these days.  The day Teresa receives her new heart will also be one of the most memorable days in our life . 

Thursday night at 10pm.  the phone rang .  All the girls were asleep except for Grace and Lucy ( they are my night owls ) . Ed had answered the phone and came running upstairs to tell me that the transplant coordinator was on the phone and Teresa had a heart .   The preliminary ultrasound looked good and it seemed to be a good match . She wanted us there as soon as possible because Teresa would need to have a procedure (plasma phoresis ) to remove her blood and filter it through a machine to remove any antibodies she may have that could reject the new heart .
Luckily everyone was home  . This would save us a lot of time .  Our bags were already packed so Ed loaded them into the car  .  We called our two sons and daughter in Law and they were at our house within 20 minutes  to stay with the girls. Everything was moving along as planned.   The only thing we did not factor into this was the reaction Grace and Lucy would have at this moment .  We thought we had prepared all of the girls for what was about to occur but the fear of  this moment really upset them and we needed to spend extra time reassuring them that everything would be all right .

As we drove to Philly , Teresa was asleep totally unaware of the enormous change about to occur in her Life.  We luckily did not run into any traffic and arrived at the hospital shortly after 12 am. . We awoke Teresa and explained to her that tonight she would receive her new heart .  She was very excited because to her receiving her new heart means she will be able to ride her bike with out wearing her oxygen .( she wants a new bike for Christmas so she was VERY excited ). 
As we entered the CICU things moved very quickly .  She was prepped and intubated for the plasma phoresis.   We were told the transplant would happen after the phoresis was complete early in the morning .   Shortly after 3 am.  Doctor Rossano asked to speak to us in the conference room .    He appeared very disappointed.  He said he was very sorry but after the Doctors had examined the donor heart it appeared not to be a good match for Teresa.   At that moment I don't think Ed or I knew exactly how to react .  I could not imagine having to go through all of this again but at the same time we did not want to take any chances with a heart that was not strong enough for Teresa. 

The plan was to stop the phoresis and slowly wake Teresa up .

The next morning after Teresa woke up she looked down at her chest and asked where her new heart was . With suggestions from  child life on how to explain this to her she slowly understood and said "OK.. , I'll wait  for my new heart to be strong ".

This experience is something that is so very difficult to go through and now we will have to do it all again very soon .  We did not want Teresa or the girls to see or feel any fear from Ed or I so we were very calm . I just pray that the next time it will be a little bit easier emotionally .

Teresa has done very well the past 3 days . She is back to being " The Boss".  Ed and I on the other hand feel as if we have been run over by a truck .

Thank you to all Teresa's prayer warriors for continuing to pray !  You all mean so much to us !